Parent Health and Functioning 13 Months After Infant or Child NICU/PICU Death
JoAnne M. Youngblut,Dorothy Brooten,G. Patricia Cantwell,Teresa Del Moral,Balagangadhar R. Totapally +4 more
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More Hispanic and black mothers than white mothers had moderate/severe depression at 6 months after infant/child death and PTSD at every time point and parents, especially minority mothers, have negative physical and mental health outcomes during the first year after NICU/PICU death.Abstract:
BACKGROUND: After a child’s death, parents may experience depression, posttraumatic stress disorder (PTSD), and increased risk for cancers, diabetes, psychiatric hospitalization, and suicide. Racial/ethnic differences are unknown. This longitudinal study investigated health and functioning of Hispanic, black, and white parents through 13 months after NICU/PICU death. METHODS: Parents (176 mothers, 73 fathers) of 188 deceased infants/children were recruited from 4 NICUs, 4 PICUs, and state death certificates 2 to 3 weeks after death. Deaths occurred after limiting treatment/withdrawing life support (57%), unsuccessful resuscitation (32%), or brain death (11%). Data on parent physical health (hospitalizations, chronic illness), mental health (depression, PTSD, alcohol use), and functioning (partner status, employment) were collected in the home at 1, 3, 6, and 13 months after death. RESULTS: Mean age for mothers was 32 ± 8, fathers 37 ± 9; 79% were Hispanic or black. Thirteen months after infant/child death, 72% of parents remained partnered, 2 mothers had newly diagnosed cancer, alcohol consumption was below problem drinking levels, parents had 98 hospitalizations (29% stress related) and 132 newly diagnosed chronic health conditions, 35% of mothers and 24% of fathers had clinical depression, and 35% of mothers and 30% of fathers had clinical PTSD. At 6 months after infant/child death, 1 mother attempted suicide. Week 1 after infant/child death, 9% of mothers and 32% of fathers returned to employment; 7 parents took no time off. More Hispanic and black mothers than white mothers had moderate/severe depression at 6 months after infant/child death and PTSD at every time point. CONCLUSIONS: Parents, especially minority mothers, have negative physical and mental health outcomes during the first year after NICU/PICU death.read more
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Assessing Psychological Trauma and PTSD
TL;DR: Wilson et al. as discussed by the authors presented a reference book on assessing psychological traumas and post-trauma disorders, which is divided into three main areas of assessment, each addressing a particular area of psychological trauma.
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Parent Perspectives of Neonatal Intensive Care at the End-of-Life
Erin R. Currie,Becky J. Christian,Pamela S. Hinds,Samuel J Perna,Cheryl Robinson,Sara W. Day,Karen Meneses +6 more
TL;DR: This descriptive qualitative study explored parent experiences related to their infant's neonatal intensive care unit (NICU) hospitalization, end-of-life care, and palliative care consultation, and parent support with "Life and death in the NICU environment" emerged as the primary theme.
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Helping parents live with the hole in their heart: The role of health care providers and institutions in the bereaved parents' grief journeys.
TL;DR: The role of the health care team and medical institutions in the grief journeys of parents whose child died a cancer‐related death is explored.
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The Grief of Parents After the Death of a Young Child.
TL;DR: It is concluded that the uniform severity of grief experiences following the death of a young child is potentially a distinct subtype of grief, deserving of attention in its own right in future research and diagnostic formulations.
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Risk factors for the development of post-traumatic stress disorder and coping strategies in mothers and fathers following infant hospitalisation in the neonatal intensive care unit.
TL;DR: Risk factors for post-traumatic stress disorder, as well as coping strategies, differ in women compare to men, and these differences may help identify the parents in whom probability of the occurrence of this disorder is increased.
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