Perceptions of Health and Healthcare of People With Intellectual and Developmental Disabilities in Medicaid Managed Care
TLDR
Perceptions of health and healthcare of people with intellectual and developmental disabilities receiving Medicaid Managed Care are examined, with implications for improving healthcare and communications between people with IDD and healthcare providers.Abstract:
This study examined perceptions of health and healthcare of people with intellectual and developmental disabilities (IDD) receiving Medicaid Managed Care. Exploratory, semistructured interviews were conducted with 23 participants. Findings indicate that participants generally expressed being in good health and defined good health as (a) absence of pain, disease, and symptoms; (b) adherence to or not requiring treatment; (c) physical self-care; (d) mental or spiritual self-care; and (e) ability to perform the activities one wants to do. Participants conceptualized healthcare as (a) ensuring needs are met through access to services, (b) obtaining quality services, (c) navigating the healthcare system successfully, and (d) receiving humanizing healthcare. This study has implications for improving healthcare and communications between people with IDD and healthcare providers.read more
Citations
More filters
Journal ArticleDOI
Barriers and Facilitators to Primary Health Care for People With Intellectual Disabilities and/or Autism: An Integrative Review
Alison Doherty,Helen Atherton,Paul Boland,Richard P. Hastings,Lucy Hives,Kerry Hood,Lynn James-Jenkinson,Ralph Leavey,Elizabeth Randell,Janet Reed,Laurence Taggart,Neil Wilson,Umesh Chauhan +12 more
TL;DR: The findings highlight the reasonable adjustments and facilitators that can be implemented to ensure that individuals with intellectual disabilities and/or autism are not excluded from primary health care.
Journal ArticleDOI
An integrative review of the hospital experiences of people with an intellectual disability: Lack of orthopaedic and trauma perspectives.
TL;DR: There is a gap in the empirical literature relating to orthopaedic or trauma hospital experiences of people with intellectual disabilities, and generalospital experiences of adults with an intellectual disability were poor overall.
Journal ArticleDOI
Healthcare inequities among adults with developmental disability: An integrative review with implications for nursing education.
TL;DR: In this paper, an integrative review synthesized research on the healthcare inequities experienced by adults with developmental disability in the United States and discussed implications for nursing education, including knowledge deficits, communication challenges and poor quality of care.
Journal ArticleDOI
A cross‐case comparison of the trauma and orthopaedic hospital experiences of adults with intellectual disabilities using interpretative phenomenological analysis
TL;DR: The cross‐case comparison component of a qualitative study exploring and describing the experiences of adults with an intellectual disability who have received trauma and orthopaedic hospital care for musculoskeletal conditions or injuries in the United Kingdom is presented.
Journal Article
Consumer inclusion: Experience of patients with intellectual and developmental disabilities informs primary care.
TL;DR: Those the authors most often exclude from the normal life of society, people with disabilities, have profound lessons to teach us, according to Jean Vanier.
References
More filters
Journal ArticleDOI
A General Inductive Approach for Analyzing Qualitative Evaluation Data
TL;DR: Although the general inductive approach is not as strong as some other analytic strategies for theory or model development, it does provide a simple, straightforward approach for deriving findings in the context of focused evaluation questions.
Journal ArticleDOI
The disability paradox: high quality of life against all odds.
TL;DR: Quality of life is dependent upon finding a balance between body, mind and spirit in the self and on establishing and maintaining an harmonious set of relationships within the person's social context and external environment.
Journal ArticleDOI
Social Model Theory: The story so far
TL;DR: Social model theory has been developing in Britain since the Union of the Physically Impaired Against Segregation (UPIAS) published their Fundamental Principles of Disability (1976), followed shortly afterwards by Finkelstein's seminal exposition of the oppression that disabled people face as mentioned in this paper.
Journal ArticleDOI
Ethical challenges and complexities of including people with intellectual disability as participants in research
TL;DR: The issue explored is whether committees are becoming increasingly conservative in their decisions and approaches, with the potential to exclude at least some people with intellectual disability from research.
Journal ArticleDOI
Health Promotion for People with Physical, Cognitive, and Sensory Disabilities: An Emerging National Priority.
James H. Rimmer,David Braddock +1 more
TL;DR: Despite the growth in health promotion programs for able-bodied people, very little effort has been devoted to developing programs for people with physical and cognitive disabilities.