Perceptions of the transition from receiving the diagnosis recessive limb-girdle muscular dystrophy to becoming in need of human support and using a wheelchair : an interview study
TLDR
Perceptions of the transition from receiving the diagnosis recessive limb-girdle muscular dystrophy to becoming in need of human support to manage daily life and using a wheelchair for ambulation are described from the affected young adults’ and their parents’ perspectives.Abstract:
PURPOSE: To describe perceptions of the transition from receiving the diagnosis recessive limb-girdle muscular dystrophy to becoming in need of human support to manage daily life and using a wheelc ...read more
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Journal ArticleDOI
The Human Condition.
TL;DR: In some religious traditions, the myth of the ‘Fall from the Garden of Eden’ symbolizes the loss of the primordial state through the veiling of higher consciousness.
Journal ArticleDOI
A Journey with LGMD: From Protein Abnormalities to Patient Impact
Dimitra G Georganopoulou,Vasilis G Moisiadis,Firhan A Malik,Ali Mohajer,Tanya M Dashevsky,Shirley T Wuu,Chih-Kao Hu +6 more
TL;DR: The limb-girdle muscular dystrophies (LGMD) are a collection of genetic diseases united in their phenotypical expression of pelvic and shoulder area weakness and wasting.
Journal ArticleDOI
Ageing with neuromuscular disease: getting lost in transitions.
TL;DR: In this paper, a qualitative study using a phenomenological-hermeneutic approach inspired by Ricoeur was conducted to explore the lived experiences of people ageing with neuromuscular disease (NMD).
Journal ArticleDOI
Participation amongst people ageing with neuromuscular disease: a qualitative study of lived experiences.
TL;DR: In this paper, a qualitative study using a phenomenological-hermeneutic approach was conducted to explore the lived experiences of participation in everyday life ageing with neuromuscular disease (NMD).
References
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World Medical Association Declaration of Helsinki: Ethical Principles for Medical Research Involving Human Subjects
TL;DR: Comparing the socialist nature of many European counties, there is a requirement that provision be made for patients to be made whole regardless of the outcomes of the trial or if they happened to have been randomized to a control group that did not enjoy the benefits of a successful experimental intervention.
Journal Article
World Medical Association Declaration of Helsinki: ethical principles for medical research involving human subjects.
TL;DR: The Helsinki Declaration on Ethical Principles for Medical Research Involving Human Subjects, adopted by the World Medical Assembly, is presented.
Book
The Human Condition
TL;DR: The Human Condition as mentioned in this paper is a classic in political and social theory, The Human Condition is a work that has proved both timeless and perpetually timely, it contains Margaret Canovan's 1998 introduction and a new foreword by Danielle Allen.
Book
Unraveling the mystery of health: how people manage stress and stay well
TL;DR: A clutter tracking and cancelling system, for use in a MTI radar system, comprising an auxiliary channel consisting primarily of a phase detector and a canceller.
Book
Learning and awareness
Ference Marton,Shirley Booth +1 more
TL;DR: A Pedagogy of Awareness as mentioned in this paper is a pedagogical approach to the understanding of the world around us that is based on the idea of Phenomenography. But it does not address the qualitative differences in learning.