Showing papers by "Marla L. Clayman published in 2012"
TL;DR: Patients' and providers' perceptions of management and barriers to quality CINV care are identified and misconceptions and establishing mutually consistent goals will lead to more effective overall care are addressed.
Abstract: Despite recent progress, chemotherapy-induced nausea and vomiting (CINV), especially delayed CINV, continues to be a problem. Delayed CINV is underestimated and perceived differently by providers and patients. Communication between providers and patients about this side effect may help improve outcomes. This study identifies patients' and providers' perceptions of management and barriers to quality CINV care. Provider and patient versions of a Nausea and Vomiting Management Barriers Questionnaire were developed to address potential barriers. Providers and patients were given opportunities to add detail in open-ended questions. Providers were recruited through the NCCN and the Oncology Nursing Society mailing lists. Patients who received at least 2 cycles of chemotherapy and experienced CINV were recruited through a consortium of advocacy groups. Both providers (n = 141) and patients (n = 299) completed the survey. Providers (41%) and patients (42%) agreed medication side effects were a concern, but more patients (63%) than providers (36%) tried to limit the number of medications taken (P < .0001). Many providers (67%) spontaneously reported barriers to managing CINV, with financial and patient-related factors among the most common. Few patients (10%) reported cost as a barrier, but 37% endorsed the desire "to be strong by not complaining." Barriers to communication and quality care of CINV differ between caregivers and patients. Addressing misconceptions and establishing mutually consistent goals will lead to more effective overall care.
63 citations
TL;DR: DEEP-SDM facilitates content analysis of encounters between women with metastatic breast cancer and their medical oncologists and helps inform the relationship of SDM to patient-reported outcomes.
59 citations
TL;DR: This study sought to determine the prevalence of distribution of fertility preservation materials, source of the Materials, and providers' perceived relevance of the materials among a sample of US oncologists.
Abstract: Background: This study sought to determine the prevalence of distribution of fertility preservation (FP) materials, source of the materials, and providers’ perceived relevance of the materials among a sample of US oncologists. Methods: A5 3‐item survey was administered via mail and the Web to a stratified sample of oncologists from the American Medical Association Masterfile. This study represents a subset of results, reporting on three survey items. Results: Among the 511 oncologists (32% response rate), only 13.5% (n=69) reported ‘always or often’ giving their patients educational materials about FP. Among those who reported ever distributing materials, 39.5% used American Cancer Society materials, 11.0% used Fertile Hope, 6.4% used Lance Armstrong Foundation, and 11.8% used ‘other’. Among those who provided materials, only 27.4% believe the FP materials they provide are ‘relevant to patient’s specific cancer diagnosis’. Conclusion: There is need to improve oncologists’ distribution of FP educational materials to patients with cancer. Copyright © 2011 John Wiley & Sons, Ltd.
34 citations
TL;DR: Hospice nurses, physicians, and social workers identified distinct, yet overlapping, approaches in aiding caregivers with medication management, and the importance of interdisciplinary teamwork among hospice providers is emphasized.
22 citations
01 Jan 2012
TL;DR: McCaffery et al. as discussed by the authors addressed health literacy in the context of the International Patient Decision Aids Standards (IPDAS) Collaboration and published an update of the background document.
Abstract: McCaffery K, Sheridan S, Nutbeam D, Clayman M, Kelly‐Blake K, Rovner M, Rovner D, Smith S, Wolf M. (2012) Addressing Health Literacy. In Volk R & Llewellyn‐Thomas H (editors). 2012 Update of the International Patient Decision Aids Standards (IPDAS) Collaboration’s Background Document. Chapter J. http://ipdas.ohri.ca/resources.html. 2012 UPDATED CHAPTER J: ADDRESSING HEALTH LITERACY (Original Title: Using Plain Language)
15 citations
01 Jan 2012
TL;DR: An update of the International Patient Decision Aids Standards (IPDAS) Collaboration’s Background Document and a new chapter on Health Literacy are published.
13 citations
TL;DR: This paper presents a meta-analysis of the literature on informing study participants of research results from wholeexome sequencing to deceased participants’ relatives of genetic inheritances and its implications for informed consent.
Abstract: Until recently, medical researchers recognized the hereditary nature of many diseases but, in most cases, little was known about which family members might be affected or might serve as a carrier. ...
6 citations
01 Jan 2012
TL;DR: What is the theoretical rationale for including this dimension?
Abstract: What is the theoretical rationale for including this dimension? Patients choosing among various screening / diagnostic / treatment options need this information in order to arrive at an informed choice. Ethical and legal obligations along with decisionmaking theory make clear that patients require information in order to ensure that the decision made is consistent with their values and preferences.
3 citations
TL;DR: In the article by Quinn and colleagues appearing in this issue regarding ovarian tissue cryopreservation (Quinn et al. 2012), the informed consent process and its participants remain vague or invis...
Abstract: In the article by Quinn and colleagues appearing in this issue regarding ovarian tissue cryopreservation (Quinn et al. 2012), the informed consent process and its participants remain vague or invis...
2 citations