Michael Dunphy

TL;DR: A framework of patient-partnered research allows patients with angiosarcoma to share their samples and clinical records securely to accelerate molecular characterization of tumors and identification of therapeutic approaches, demonstrating that empowering patients to directly participate in research can overcome barriers in rare diseases and can enable discoveries.

TL;DR: A patient-partnered research approach using online engagement to discover the etiology and potential therapies for angiosarcoma patients demonstrates that empowering patients to directly participate in research can overcome barriers in rare diseases and enable biological and clinical discoveries.

TL;DR: Clinical and genomic data are used to generate genomic landscapes in pt subgroups and to identify mechanisms of response and resistance to therapies to accelerate research.

TL;DR: The Metastatic Prostate Cancer Project (MPCproject, mpcproject.org) is a patient-partnered initiative to involve patients with metastatic prostate cancer living anywhere in the US and Canada in molecular research as mentioned in this paper .

TL;DR: Patients worked with patients to develop patient-driven studies which empower patients to share samples and clinical data to generate a public database of clinical, genomic, and pt-reported data to accelerate discoveries and the development of new treatment strategies.