S
Susan M. Webb
Researcher at Autonomous University of Barcelona
Publications - 303
Citations - 8784
Susan M. Webb is an academic researcher from Autonomous University of Barcelona. The author has contributed to research in topics: Acromegaly & Quality of life. The author has an hindex of 48, co-authored 281 publications receiving 7646 citations. Previous affiliations of Susan M. Webb include Carlos III Health Institute & Hospital de Sant Pau.
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Journal Article
Photoreceptor damage and eye pigmentation
Journal ArticleDOI
Molecular profiling for assistance to pharmacological treatment of acromegaly
Manuel Puig-Domingo,Joan Gil,Miguel Sampedro,Susan M. Webb,Guillermo Serra,Isabel Salinas,Alberto Blanco,Montse Marques-Pamies,Antonio Pico,Araceli García-Martínez,Concepción Blanco,Pozo Carlos Del,Gabriel Obiols,Cristina Álvarez-Escolá,Rosa Cámara,Carmen Fajardo,Raul M Luque,Justo P. Castaño,Mercedes Robledo,Mireia Jordà,Ignacio Bernabeu,Monica Marazuela +21 more
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Características de la versión española del cuestionario de calidad de vida QLSM-H en sujetos adultos con deficiencia de hormona de crecimiento tratados con somatotropina. Estudio piloto
Ignacio Bernabeu,Sonia Gaztambide,Edelmiro Menéndez,Susan M. Webb,A. García-Patterson,M. Díaz,J. Ferrer,J. Biarnés,Albert Lecube,G. Henrich,P. Herschbach,Werner F. Blum,F. MaríNk +12 more
TL;DR: La version inicial espanola del modulo enfermedad-especifico del cuestionario QLS es una herramienta valida, reproducible and sensible para evaluar the satisfaccion of the calidad of vida relacionada with the salud of los pacientes con deficiencia of GH y para monitorizar the efectos del tratamiento sustitutivo con somatotropina.
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Patient journey experiences may contribute to improve healthcare for patients with rare endocrine diseases
Susan M. Webb,Jette Kolding Kristensen,Anna Nordenström,D. Vitali,Vincent Amodru,Lenja Katharina Wiehe,Matt Bolz-Johnson +6 more
TL;DR: Patient journeys are instruments developed by EURORDIS, The Voice of Rare Disease Patients in Europe, to collect patients' experiences and can complete the clinical evaluation and management of a specific disease, improving the often long diagnostic delay, therapy, patient education and access to knowledgeable multidisciplinary teams.