Journal ArticleDOI
Bereaved parents' perspectives on their needs.
TLDR
Parents perceived flexible and continuous bereavement services from the treating hospital as a necessary transition to community services and talking to other parents with similar experiences and maintaining contact with staff at the treatinghospital were considered critical in their healing after the loss.Abstract:
Objective:The loss of a child can be traumatic for parents, given the profound bond established with the deceased child. Parental bereavement and the need for bereavement services are not well understood. This study examined parental perspectives regarding bereavement services from a pediatric oncology treating center.Methods:A 2-h focus group of seven parents, audiotaped and transcribed verbatim, was conducted by two facilitators using open-ended questions to generate discussion regarding their views of what services were or would be helpful during early bereavement.Results:Parents perceived flexible and continuous bereavement services from the treating hospital as a necessary transition to community services. Talking to other parents with similar experiences and maintaining contact with staff at the treating hospital were considered critical in their healing after the loss.Significance of results:Transitional multimodality bereavement services offered by the treating hospital will improve the quality of life of bereaved families.read more
Citations
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Basics of qualitative research: Grounded theory procedures and techniques
TL;DR: Reading a book as this basics of qualitative research grounded theory procedures and techniques and other references can enrich your life quality.
Journal ArticleDOI
Bereavement: Reactions, Consequences, and Care
TL;DR: This highly readable compendium of knowledge and research in the study of bereavement will leave no one in doubt as to the necessity for further efforts in clinical, biologic, and public health research.
Journal ArticleDOI
Early parental adjustment and bereavement after childhood cancer death.
Maru Barrera,Kathleen O'Connor,Norma Mammone D'Agostino,Lynlee Spencer,David Nicholas,Vesna Jovcevska,Susan Tallet,Gerald Schneiderman +7 more
TL;DR: This study comprehensively explored parental bereavement and adjustment at 6 months post-loss due to childhood cancer with 3 domains: Perception of the Child, describing bereavement before and after the loss; Perception of Others, including relationships with partners, surviving children, and their social network; and perception of the World, exploring parents' perceived meanings of the experience in the context of their worldview.
Journal ArticleDOI
Hospital-based bereavement services following the death of a child: a mixed study review.
Leigh A Donovan,Leigh A Donovan,Leigh A Donovan,Claire E. Wakefield,Vera Russell,Richard J. Cohn +5 more
TL;DR: It is recommended that bereavement services be theoretically driven and evidence based, offer continuity of care prior to and following the death of a child, and provide a range of interventions for the “whole family” and flexibility in service delivery.
Journal ArticleDOI
Bereavement Follow-Up After the Death of a Child as a Standard of Care in Pediatric Oncology.
Wendy G. Lichtenthal,Corinne Sweeney,Corinne Sweeney,Kailey E. Roberts,Geoffrey W. Corner,Geoffrey W. Corner,Leigh A Donovan,Holly G. Prigerson,Lori Wiener +8 more
TL;DR: Evidence suggests that the standard of care should consist of at least one meaningful contact between the healthcare team and bereaved parents to identify those at risk for negative psychosocial sequelae and to provide resources for bereavement support.
References
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Journal ArticleDOI
Basics of qualitative research : grounded theory procedures and techniques
Anselm L. Strauss,Juliet Corbin +1 more
TL;DR: In this article, the authors discuss the uses of literature and open coding techniques for enhancing theoretical sensitivity of theoretical studies, and give guidelines for judging a grounded theory study.
Journal ArticleDOI
Basics of qualitative research: Grounded theory procedures and techniques
TL;DR: Reading a book as this basics of qualitative research grounded theory procedures and techniques and other references can enrich your life quality.
Journal ArticleDOI
Qualitative Research: Introducing focus groups
TL;DR: This paper introduces focus group methodology, gives advice on group composition, running the groups, and analysing the results, and gives advice to researchers on how to run and manage focus groups.
Book
Principles and Practice of Pediatric Oncology
Philip A. Pizzo,David G. Poplack +1 more
TL;DR: The principles and practice of pediatric oncology are discussed in this article, where the authors propose a framework for the development of a pediatrics oncologist based on the principles and practices of cancer.
Journal ArticleDOI
Symptoms and suffering at the end of life in children with cancer.
Joanne Wolfe,Holcombe E. Grier,Neil Klar,Sarah B. Levin,Jeffrey M. Ellenbogen,Susanne Salem-Schatz,Ezekiel J. Emanuel,Jane C. Weeks +7 more
TL;DR: Greater attention must be paid to palliative care for children who are dying of cancer, as many have substantial suffering in the last month of life, and attempts to control their symptoms are often unsuccessful.