Journal ArticleDOI
Comparative Analysis: Implementation of a Pre-operative Educational Intervention to Decrease Anxiety Among Parents of Children With Congenital Heart Disease.
Silvio Simeone,Gianluca Pucciarelli,Marco Perrone,Teresa Rea,Gianpaolo Gargiulo,Grazia Dell'Angelo,Assunta Guillari,Giuseppe Comentale,Gaetano Di Palma,Carlo Vosa +9 more
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TLDR
It is speculated that pre‐surgery parent education on what to expect before, during and after their child's cardiac surgery may improve parents' knowledge and satisfaction and decrease anxiety.About:
This article is published in Journal of Pediatric Nursing.The article was published on 2017-01-25. It has received 37 citations till now. The article focuses on the topics: Anxiety.read more
Citations
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Journal ArticleDOI
Burden of care
TL;DR: Hazel Davis looks at resources for young carers and what happens when there is a good reason for bad behaviour or attendance.
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Parental stress and resilience in CHD: a new frontier for health disparities research
TL;DR: A thorough synthesis of the current literature on parental stress addressing disparities in parents of children with CHD is provided and a new comprehensive framework, the Parental Stress and Resilience in CHD Model, is presented.
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Health-related quality of life in congenital heart disease surgery in children and young adults: a systematic review and meta-analysis
TL;DR: CHD surgical patients have substantially worse HRQOL compared with age-matched healthy controls, and strategies should focus on improvingHRQOL in this subgroup.
Journal ArticleDOI
Parent Perspectives on Family-Based Psychosocial Interventions for Congenital Heart Disease.
Colette Gramszlo,Allison Karpyn,Abigail C Demianczyk,Amanda J. Shillingford,Erin Riegel,Anne E. Kazak,Erica Sood +6 more
TL;DR: Individualized, formalized, and multidisciplinary approaches to psychosocial care are necessary to best accommodate the dynamic stressors related to parenting a child with CHD and may mitigate the impact of parent mental health problems on child outcomes.
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The lived experiences of the parents of children admitted to a paediatric cardiac intensive care unit.
Silvio Simeone,Gianluca Pucciarelli,Marco Perrone,Grazia Dell Angelo,Rea Teresa,Assunta Guillari,Gianpaolo Gargiulo,Giuseppe Comentale,Gaetano Di Palma +8 more
TL;DR: Three main themes emerged: 1) the fear of the potential loss of their children, (2) the feeling of having lost their roles as parents and (3) the desire to receive more information and be an active part of the treatment process.
References
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Manual for the State-Trait Anxiety Inventory
TL;DR: The STAI as mentioned in this paper is an indicator of two types of anxiety, the state and trait anxiety, and measure the severity of the overall anxiety level, which is appropriate for those who have at least a sixth grade reading level.
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Birth prevalence of congenital heart disease worldwide: a systematic review and meta-analysis.
Denise van der Linde,Elisabeth E.M. Konings,Maarten A. Slager,Maarten Witsenburg,Willem A. Helbing,Johanna J.M. Takkenberg,Jolien W. Roos-Hesselink +6 more
TL;DR: There needs to be further investigation to tailor the management of this global health problem, and access to health care is still limited in many parts of the world, probably accounting for differences in reported birth prevalence between high- and low-income countries.
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Neurodevelopmental outcomes in children with congenital heart disease: evaluation and management: a scientific statement from the American Heart Association.
Bradley S. Marino,Paul H. Lipkin,Jane W. Newburger,Georgina Peacock,Marsha Gerdes,J. William Gaynor,Kathleen A. Mussatto,Karen Uzark,Caren S. Goldberg,Walter H. Johnson,Jennifer S. Li,Sabrina E. Smith,David C. Bellinger,William T. Mahle +13 more
TL;DR: A CHD algorithm for surveillance, screening, evaluation, reevaluation, and management of developmental disorder or disability has been constructed to serve as a supplement to the 2006 American Academy of Pediatrics statement on developmental surveillance and screening.
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Prevalence of Congenital Heart Defects in Metropolitan Atlanta, 1998–2005
Mark D. Reller,Matthew J. Strickland,Matthew J. Strickland,Tiffany Riehle-Colarusso,William T. Mahle,Adolfo Correa +5 more
TL;DR: This study, using a standardized cardiac nomenclature and classification, provides current prevalence estimates of the various CHD subtypes that can be used to assess variations in prevalence across populations, time, or space.
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Preoperative Anxiety, Postoperative Pain, and Behavioral Recovery in Young Children Undergoing Surgery
TL;DR: Preoperative anxiety in young children undergoing surgery is associated with a more painful postoperative recovery and a higher incidence of sleep and other problems.