Invasive home mechanical ventilation: living conditions and health-related quality of life.
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Patients undergoing invasive HMV primarily following unsuccessful weaning reported an individual HRQL which, when taken together, was highly heterogeneous and ranged from very good to extremely bad.Abstract:
Background: The number of patients with invasive home mechanical ventilation (HMV) following unsuccessful weaning is steadily increasing, but little is known about the living conditions and health-related quality of life (HRQL) in these patients. Objectives: To establish detailed information on living conditions and HRQL in patients with invasive HMV. Methods: The Severe Respiratory Insufficiency Questionnaire (SRI) was used to measure specific HRQL aspects in addition to patient interviews on individual living conditions during home visits. Results: Thirty-two patients with lung disease, most prominently COPD (n = 18), and neuromuscular disorders (n = 14) were included. The overall mean SRI summary scale score (range 0-100) was 53 ± 16, with a broad range amongst individuals (23-86). Neuromuscular patients were younger than those with lung diseases (49 ± 18 vs. 67 ± 11 years; p Conclusions: Patients undergoing invasive HMV primarily following unsuccessful weaning reported an individual HRQL which, when taken together, was highly heterogeneous and ranged from very good to extremely bad. Older patients with COPD and more comorbidities are likely to have a worse HRQL than neuromuscular patients, while the living situation does not influence the HRQL.read more
Citations
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Journal ArticleDOI
[Guidelines for Non-Invasive and Invasive Home Mechanical Ventilation for Treatment of Chronic Respiratory Failure - Update 2017].
W Windisch,Michael Dreher,J. Geiseler,K. Siemon,J. Brambring,Dominic Dellweg,B. Grolle,S. Hirschfeld,T. Köhnlein,Uwe Mellies,Simone Rosseau,B. Schönhofer,B. Schucher,A. Schütz,Helmut Sitter,S. Stieglitz,Jan Hendrik Storre,M. Winterholler,Peter Young,Stephan Walterspacher +19 more
TL;DR: Diese Leitlinie hat eine Gultigkeit von drei Jahren, beginnend mit dem Datum der Veroffentlichung auf der Homepage der Arbeitsgemeinschaft der Wissenschaftlichen Medizinischen Fachgesellschaften e.
Journal ArticleDOI
Quality of life and life satisfaction are severely impaired in patients with long-term invasive ventilation following ICU treatment and unsuccessful weaning.
SE Huttmann,Friederike Sophie Magnet,Christian Karagiannidis,Jan Hendrik Storre,Wolfram Windisch +4 more
TL;DR: Despite maximal patient care and a full supply of technical aids, both HRQL and life satisfaction are severely impaired in many invasive HMV patients who have failed prolonged weaning, which raises ethical concerns about the use of long-term invasiveHMV following unsuccessful weaning.
Journal ArticleDOI
Invasive and Non-Invasive Ventilation in Patients With COVID-19.
Wolfram Windisch,Steffen Weber-Carstens,Stefan Kluge,Rolf Rossaint,Tobias Welte,Chrisitian Karagiannidis +5 more
TL;DR: Germany is better prepared that other countries to provide COVID-19 patients with appropriate respiratory care, in view of the high per capita density of intensive-care beds and the availability of a nationwide, interdisciplinary intensive care registry for the guidance and coordination of intensive care in patients who need it.
Journal ArticleDOI
[Evolving Epidemiology of Home Mechanical Ventilation: A Rapidly Growing Challenge for Patient Care].
Christian Karagiannidis,Stephan Strassmann,Jens Callegari,Matthias Kochanek,Uwe Janssens,Wolfram Windisch +5 more
TL;DR: Der exponentielle Anstieg der sehr pflegeintensiven Patienten stellt das Gesundheitssystem vor extreme Herausforderungen and erfordert eine gesundheitspolitische Diskussion über die Grenzen des Systems.
Journal ArticleDOI
Prolonged Weaning from Mechanical Ventilation.
Wolfram Windisch,Dominic Dellweg,J. Geiseler,Michael Westhoff,Michael Pfeifer,Stefan Suchi,Bernd Schönhofer +6 more
TL;DR: Overall, the results warrant the establishment of specialized weaning centers for patients in whom weaning on the intensive care unit (ICU) was unsuccessful and Variables associated with death and weaningfailure can be integrated into ICU decision-making processes.
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Patterns of home mechanical ventilation use in Europe: results from the Eurovent survey
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TL;DR: Wide variations exist in the patterns of home mechanical ventilation provision throughout Europe and further work is needed to monitor its use and ensure equality of provision and access.