Patient non-compliance with paper diaries
TLDR
This study used a newly developed paper diary that could objectively record when patients made diary entries in order to compare patients' reported and actual compliance with diary keeping, and used an electronic diary designed to enhance compliance inorder to assess what compliance rates might be achieved.Abstract:
Doctors often ask patients to recall recent health experiences, such as pain, fatigue, and quality of life1 Research has shown, however, that recall is unreliable and rife with inaccuracies and biases2 Recognition of recall's shortcomings has led to the use of diaries, which are intended to capture experiences close to the time of occurrence, thus limiting recall bias and producing more accurate data3
The rationale for using diaries would be undermined if patients failed to complete diaries according to protocol In this study we used a newly developed paper diary that could objectively record when patients made diary entries in order to compare patients' reported and actual compliance with diary keeping For comparison, we also used an electronic diary designed to enhance compliance in order to assess what compliance rates might be achieved
We recruited 80 adults with chronic pain (pain for ≥3 hours a day and rated ≥4 on a 10 point scale) and assigned 40 to keeping a paper …read more
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Patient compliance with paper and electronic diaries
TL;DR: The findings call into question the use of paper diaries and suggest that electronic diaries with compliance-enhancing features are a more effective way of collecting diary information.
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Content validity--establishing and reporting the evidence in newly developed patient-reported outcomes (PRO) instruments for medical product evaluation: ISPOR PRO Good Research Practices Task Force report: part 2--assessing respondent understanding.
Donald L. Patrick,Laurie B. Burke,Chad J. Gwaltney,Nancy Kline Leidy,Mona L. Martin,Elizabeth Molsen,Lena Ring +6 more
TL;DR: This task force report is intended to offer suggestions for good practice in planning, executing, and documenting qualitative studies that are used to support the content validity of PRO instruments to be used in medical product evaluation.
References
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BookDOI
Handbook of health psychology
TL;DR: This work focuses on the part of the literature concerned with the role of psychology in the treatment of health and illness in the context of the family and the literature on social psychology in general.
Journal ArticleDOI
Diary keeping in asthma: comparison of written and electronic methods.
TL;DR: Poor diary completion may result from having unreasonable expectations of patients and giving incomplete instructions, and electronic, time coded diaries could ensure better quality of records.