B
Bartha Maria Knoppers
Researcher at McGill University
Publications - 516
Citations - 54285
Bartha Maria Knoppers is an academic researcher from McGill University. The author has contributed to research in topics: Biobank & Population. The author has an hindex of 63, co-authored 491 publications receiving 44965 citations. Previous affiliations of Bartha Maria Knoppers include Catholic University of the Sacred Heart & University of Alberta.
Papers
More filters
Journal ArticleDOI
Data Sharing, Year 1 — Access to Data from Industry-Sponsored Clinical Trials
TL;DR: Since May 2013, researchers have been able to request access to deidentified patient-level data from GlaxoSmithKline–sponsored clinical trials, subject to oversight by an independent review panel, which has been a productive first step in transparency.
Journal ArticleDOI
Population studies: return of research results and incidental findings Policy Statement.
TL;DR: The Public Population Project in Genomics and Society considers it important to propose a policy that distinguishes between the contexts of population research and disease (clinical) research involving patients and then delineates actual and future obligations.
Journal ArticleDOI
Extending the reach of public health genomics: What should be the agenda for public health in an era of genome-based and “personalized” medicine?
Wylie Burke,Hilary Burton,Alison Hall,Mohamed A. Karmali,Muin J. Khoury,Bartha Maria Knoppers,Eric M. Meslin,Fiona J. Stanley,Caroline F. Wright,Ronald L. Zimmern +9 more
TL;DR: An international multidisciplinary meeting was held in May 2010 in Ickworth, United Kingdom, with the aim of setting an agenda for the development of public health in an era of genome-based and “personalized” medicine, suggesting a need to reconfigure both the focus for existing genomic research and the stage at which funding is targeted.
Journal ArticleDOI
Data analysis: Create a cloud commons
TL;DR: Major funding agencies should ensure that large biological data sets are stored in cloud services to enable easy access and fast analysis, say Lincoln D. Stein and colleagues.
Journal ArticleDOI
A human rights approach to an international code of conduct for genomic and clinical data sharing.
TL;DR: This article proposes that an international code of conduct be designed to enable global genomic and clinical data sharing for biomedical research and proposes to position it within a human rights framework.