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Bartha Maria Knoppers
Researcher at McGill University
Publications - 516
Citations - 54285
Bartha Maria Knoppers is an academic researcher from McGill University. The author has contributed to research in topics: Biobank & Population. The author has an hindex of 63, co-authored 491 publications receiving 44965 citations. Previous affiliations of Bartha Maria Knoppers include Catholic University of the Sacred Heart & University of Alberta.
Papers
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Journal ArticleDOI
A decision tool to guide the ethics review of a challenging breed of emerging genomic projects.
Yann Joly,Derek So,Gladys Osien,Laura Crimi,Martin Bobrow,Don Chalmers,Susan E. Wallace,Nikolajs Zeps,Bartha Maria Knoppers +8 more
TL;DR: A novel two-step decision tool for researchers and policymakers, which uses traditional criteria to sort clearly defined activities while requiring the use of actual risk levels to decide more complex cases is synthesized.
Book ChapterDOI
What is in a Clause
TL;DR: A comparative examination of clauses contained in consent materials from disease biobanks and population biob banks points to the factors that are specific to each type of biobank and highlights the issues that should be taken into consideration when creating consent materials for biobanking activities.
Journal ArticleDOI
Regulation of International Direct-to-Participant Genomic Research: Symposium Introduction.
TL;DR: The legal and policy analyses presented here attempt to reduce the lag time between science and law by calling attention to an emerging trend in genomic research, assessing the current state of the law in 31 representative countries, and proposing a series of recommendations to facilitate genomic research while remaining faithful to the ethical foundations of the laws regulating biomedical research around the world.
Journal ArticleDOI
Developing Educational Resources to Advance Umbilical Cord Blood Banking and Research: A Canadian Perspective
TL;DR: The Primer is intended to assist research Ethics boards in evaluating the ethical acceptability of research protocols, to facilitate harmonized decision-making by providing a common reference, and to highlight the role of research ethics boards in governance frameworks.