B
Bartha Maria Knoppers
Researcher at McGill University
Publications - 516
Citations - 54285
Bartha Maria Knoppers is an academic researcher from McGill University. The author has contributed to research in topics: Biobank & Population. The author has an hindex of 63, co-authored 491 publications receiving 44965 citations. Previous affiliations of Bartha Maria Knoppers include Catholic University of the Sacred Heart & University of Alberta.
Papers
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Journal ArticleDOI
Concordance of International Regulation of Pediatric Health Research.
Mark A. Rothstein,Dimitri Patrinos,K. Brothers,Ellen Wright Clayton,Yann Joly,Ma'n H. Zawati,Pamela Andanda,Thalia Arawi,Don Chalmers,Haidan Chen,Mohammed Ghaly,Ryoko Hatanaka,Aart Hendriks,Calvin W. L. Ho,Jane Kaye,Dorota Krekora-Zajac,Won Bok Lee,Titti Mattsson,Pilar Nicolás,Obiajulu Nnamuchi,Emmanuelle Rial-Sebbag,Gil Siegal,Jane Wathuta,Bartha Maria Knoppers +23 more
TL;DR: A representative sample of 21 countries was selected to assess the comparability of international ethics principles and practices used in regulating pediatric research as a first step in determining whether reciprocal deference for international ethics review is feasible as discussed by the authors .
Posted Content
An Ethics Safe Harbor for International Genomics Research
TL;DR: The Safe Harbor Framework for International Ethics Equivalency (SHF-IFER) as mentioned in this paper is an international infrastructure for data-driven genomics research that is based on the international privacy "safe harbor" model that was developed following the adoption of the European Privacy Directive.
Book ChapterDOI
Ethics and Genetics
Yann Joly,Bartha Maria Knoppers +1 more
TL;DR: Exploring complex issues faced in this twenty-first century genetics era emphasizes the need to adapt ethical guidelines and educate ethics committees about the benefits and ethical challenges of contemporary genetic research.