Bartha Maria Knoppers

TL;DR: These principles will guide RMGA researchers, and researchers across Quebec, in the planning and execution of genetic and genomic research projects.

TL;DR: Interestingly, Chinese geneticists differ, in almost every area of response, from their North American and western European counterparts, whereas in North America and western Europe the consensus is against newborn screening for carrier status, the testing of children for late-onset disorders, shared marital decision making before and after conception, and obligatory pre-employment or prenatal screening, other areas of the world take positions based on a collective notion of social duties and responsibilities.

TL;DR: In this article, the authors map the contours of parental authority to access their child's raw genomic data and provide recommendations for healthcare professionals in the clinical and research contexts when faced with a parental request for a child's genomic data.

TL;DR: Legal and regulatory barriers to the incorporation of precision medicine into healthcare are examined, with specific attention paid to analyzing recent health privacy laws, court cases, and medical device regulations.