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Bartha Maria Knoppers
Researcher at McGill University
Publications - 516
Citations - 54285
Bartha Maria Knoppers is an academic researcher from McGill University. The author has contributed to research in topics: Biobank & Population. The author has an hindex of 63, co-authored 491 publications receiving 44965 citations. Previous affiliations of Bartha Maria Knoppers include Catholic University of the Sacred Heart & University of Alberta.
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Genetic choices: a paradigm for prospective international ethics?
TL;DR: The argument is that even on a national level, biopolicy is "often elusive,*' "unwise," and "codifies answers'* (Bonnicksen, 1992:53, 61). national policies, then, should serve as national policies.
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Substitute consent to data sharing: a way forward for international dementia research?
TL;DR: Comparing regulatory frameworks governing capacity, research, and personal data protection across eight countries to determine when substitute decision makers (SDMs) can consent to data sharing is compared.
Legal aspects of genetic databases for international biomedical research: the example of the International Cancer Genome Consortium (ICGC)
Carlos M. Romeo-Casabona,Pilar Nicolás,Bartha Maria Knoppers,Yann Joly,Susan E. Wallace,Don Chalmers,Stephanie O.M. Dyke,Karen Kennedy,Antonio Troncoso,Terry Sheung-Hung Kaan,Emmanuelle Rial-Sebbag +10 more
TL;DR: How the International Cancer Genome Consortium is developing policies and procedures to address the ethical and legal issues raised by the international transfer of data and results is described.
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Streamlining review of research involving humans: Canadian models
TL;DR: In this article, a distinction between multi-site and multi-jurisdictional research is made, where the former ensures appropriate ongoing ethical oversight and participant protections, while the latter enables research collaboration by providing researchers with access to data.
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Genetic predisposition to cancer--issues to consider.
TL;DR: Through mult-disciplinary approaches supported in part by the Human Genome Project and other research efforts, information is being gathered that may lay the foundation for legislative, scientific and clinical guidelines and recommendations throughout the international community.