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Bartha Maria Knoppers
Researcher at McGill University
Publications - 516
Citations - 54285
Bartha Maria Knoppers is an academic researcher from McGill University. The author has contributed to research in topics: Biobank & Population. The author has an hindex of 63, co-authored 491 publications receiving 44965 citations. Previous affiliations of Bartha Maria Knoppers include Catholic University of the Sacred Heart & University of Alberta.
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Journal Article
Recontacting Pediatric Research Participants for Consent When They Reach the Age of Majority.
Bartha Maria Knoppers,Karine Sénécal,Joanne Boisjoli,Pascal Borry,Martina C. Cornel,Conrad V. Fernandez,Jasjote Grewal,Ingrid A. Holm,Erin Nelson,Wim Pinxten,Mahsa Shabani,Anne Marie Tassé,Ma'n H. Zawati,Wright Clayton +13 more
TL;DR: Using three different contexts (longitudinal studies, clinical trials, and newborn screening), it is argued that distinctions should be made between the risks and benefits involved in recontacting for consent before determining the potential duties of researchers.
Journal ArticleDOI
Genetic technologies, health care policy and the patent bargain.
TL;DR: Creative and bold patent reform initiatives are necessary to ensure that society will, to the highest degree possible, reap the health care benefits of the genetic revolution.
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An international policy on returning genomic research results.
TL;DR: The Global Alliance for Genomics and Health (GAGH) as discussed by the authors has proposed a policy for the return of clinically actionable genomic research results, the first such policy approved by an international body.
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Stem Cell Research Ethics: Consensus Statement on Emerging Issues
Timothy Caulfield,Ubaka Ogbogu,Erin Nelson,Edna F. Einsiedel,Bartha Maria Knoppers,Michael McDonald,Fern Brunger,Robin Downey,Kanchana Fernando,Jacques Galipeau,Rose Geransar,Glenn Grenier,Insoo Hyun,Rosario Isasi,Melanie D. Kardel,Lori Knowles,Terrence Kucic,Salla Lotjonen,Drew Lyall,David Magnus,Debra J. H. Mathews,Matthew C. Nisbet,Jeffrey A. Nisker,Guillaume Paré,Shaun D. Pattinson,Daryl Pullman,Michael A. Rudnicki,Michael A. Rudnicki,Bryn Williams-Jones,Susan Zimmerman +29 more
TL;DR: The recommendations provided in the consensus statement focus on issues of immediate relevance to Canadian policy-makers, including informed consent to hESC research, the use of fresh embryos in research, management of conflicts of interest, and the relevance of public opinion research to policy-making.
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Access Governance for Biobanks: The Case of the BioSHaRE-EU Cohorts.
Jane Kaye,Linda Briceño Moraia,Colin Mitchell,Jessica Bell,Jasper Bovenberg,Anne-Marie Tassé,Bartha Maria Knoppers +6 more
TL;DR: Biobanking and Biomolecular Resources Research Infrastructure-European Research Infrastructure Consortia (BBMRI-ERIC), a European consortium of biobanks and bioresources with its own ethical, legal, and social implications (ELSI) common service, could provide a platform by developing guidelines for harmonized internal processes.