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Bartha Maria Knoppers
Researcher at McGill University
Publications - 516
Citations - 54285
Bartha Maria Knoppers is an academic researcher from McGill University. The author has contributed to research in topics: Biobank & Population. The author has an hindex of 63, co-authored 491 publications receiving 44965 citations. Previous affiliations of Bartha Maria Knoppers include Catholic University of the Sacred Heart & University of Alberta.
Papers
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Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings
TL;DR: The liability risks associated with the disclosure of significant research findings for investigators in the United States are discussed in this paper, where the authors argue that there is no explicit legal duty to disclose such findings.
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Of genomics and public health: Building public “goods”?
TL;DR: “Global public goods favor the mechanism of public information resources and free and open communication therein, so genomic databases while recognizing the initial contribution of individual participants and of individual researchers or commercial investors should also account for the needs of present and future generations.
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Blurring lines the research activities of direct-to-consumer genetic testing companies raise questions about consumers as research subjects
TL;DR: The research activities of direct-to-consumer genetic testing companies raise questions about consumers as research subjects, and whether consumers should be considered research subjects or not.
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An International Framework for Data Sharing: Moving Forward with the Global Alliance for Genomics and Health
TL;DR: The human rights pillars that underlie the Framework and mission of the Global Alliance are discussed and the Global alliance's use of data governance policies through a number of demonstration projects are outlined.
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Genetic information and life insurance: a 'real' risk?
TL;DR: This paper aims to separate myths from realities regarding genetic discrimination in life insurance and to underline the positive aspects of allowing insurers access to relevant genetic information for underwriting purposes.