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Stephanie Sivell
Researcher at Cardiff University
Publications - 71
Citations - 2114
Stephanie Sivell is an academic researcher from Cardiff University. The author has contributed to research in topics: Palliative care & Medicine. The author has an hindex of 18, co-authored 54 publications receiving 1769 citations.
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Journal ArticleDOI
Assessing the Quality of Decision Support Technologies Using the International Patient Decision Aid Standards instrument (IPDASi)
Glyn Elwyn,Annette M. O'Connor,Carol Bennett,Robert G. Newcombe,Mary C. Politi,Marie-Anne Durand,Elizabeth R. Drake,Natalie Joseph-Williams,Sara D. Khangura,Anton Saarimaki,Stephanie Sivell,Mareike Stiel,Steven J. Bernstein,Nananda F. Col,Angela Coulter,Karen Eden,Martin Härter,Margaret Holmes Rovner,Nora Moumjid,Dawn Stacey,Richard Thomson,Timothy J. Whelan,Trudy van der Weijden,Adrian Edwards +23 more
TL;DR: The existing IPDASi provides an assessment of the quality of a DST's components and will be used as a tool to provide formative advice to DSTs developers and summative assessments for those who want to compare their tools against an existing benchmark.
Journal ArticleDOI
Toward Minimum Standards for Certifying Patient Decision Aids A Modified Delphi Consensus Process
Natalie Joseph-Williams,Robert G. Newcombe,Mary C. Politi,Marie-Anne Durand,Stephanie Sivell,Dawn Stacey,Annette M. O'Connor,Robert J. Volk,Adrian Edwards,Carol Bennett,Michael Pignone,Richard Thomson,Glyn Elwyn,Glyn Elwyn +13 more
TL;DR: A modified Delphi consensus process is reported to agree on IPDASi (v3.0) items that should be considered as minimum standards for PDA certification, for inclusion in the refined IPDasi ( v4.0).
Journal ArticleDOI
Process and outcome in communication of genetic information within families: a systematic review
Clara Gaff,Angus John Clarke,Paul Atkinson,Stephanie Sivell,Glyn Elwyn,Rachel Iredale,Hazel Thornton,Joanna Dundon,Christine Shaw,Adrian Edwards +9 more
TL;DR: A systematic review of actual communication in families about genetic risk was conducted, finding that there is insufficient information to inform the development of theoretically and empirically based practice to foster ‘good’ communication.
Journal ArticleDOI
How risk is perceived, constructed and interpreted by clients in clinical genetics, and the effects on decision making: systematic review
Stephanie Sivell,Glyn Elwyn,Clara Gaff,Angus John Clarke,Rachel Iredale,Christine Shaw,Joanna Dundon,Hazel Thornton,Adrian Edwards +8 more
TL;DR: A more focused approach to research is needed with greater exploration of the ways in which risk is constructed, along with the development of stronger theoretical models, to facilitate effective and patient-centered counseling strategies.
Journal ArticleDOI
How to develop web-based decision support interventions for patients: A process map
Glyn Elwyn,Ilse Kreuwel,Marie-Anne Durand,Stephanie Sivell,Natalie Joseph-Williams,Rhodri Evans,Adrian Edwards +6 more
TL;DR: A systematic process map is proposed for others to consider as they develop web-based, perhaps multimedia, decision support interventions and to examine the future challenges faced by developers.