Journal ArticleDOI
How Should Nations Measure the Quality of End‐of‐Life Care for Older Adults? Recommendations for an International Minimum Data Set
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TLDR
The importance of developing national minimum data sets that can be used to assess the quality of end‐of‐life care that older adults receive are described and key variables that these data sets should include are recommended.Abstract:
Nations face numerous challenges in providing high-quality end-of-life care for their citizens, and an aging population that has a prolonged trajectory of decline and substantial needs for care magnifies these challenges. As nations begin to address these challenges, it will be essential to determine whether their responses are effective, but current national data collection efforts are sporadic, and data are often collected only for patients who receive care through certain funding programs or provider organizations or in selected sites of care. Therefore, governments do not know whether their citizens are receiving adequate care, whether current programs are improving care, or how their outcomes compare with those of other countries. This article describes the importance of developing national minimum data sets that can be used to assess the quality of end-of-life care that older adults receive and recommends key variables that these data sets should include.read more
Citations
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End of Life Care Strategy
TL;DR: The End of Life Care Strategy aims to improve the provision of care for all adults at the end of life, and their families and carers.
Journal ArticleDOI
Quality Indicators for Palliative Care: A Systematic Review
TL;DR: It is concluded that a substantial number of quality indicators for palliative care are available, but most have not been described in detail and more detailed methodological specifications are needed to accurately monitor the quality of palliatives care.
Journal ArticleDOI
A Nationwide VA Palliative Care Quality Measure: The Family Assessment of Treatment at the End of Life
David Casarett,Amy Pickard,F. Amos Bailey,Christine S. Ritchie,Christian Davis Furman,Ken Rosenfeld,Scott Shreve,Judy A. Shea +7 more
TL;DR: The FATE survey offers an important source of quality data that can be used to improve the end-of-life care of all veterans, regardless of the type of care they receive or their site of death.
Journal ArticleDOI
Dying well: factors that influence the provision of good end-of-life care for older people in acute and long-stay care settings in Ireland.
Dympna Casey,Kathy Murphy,Áine Ní Léime,Philip Larkin,Sheila Payne,Katherine Froggatt,Eamon O'Shea +6 more
TL;DR: In this article, the authors explore key stakeholders and direct care managers' perspectives on the current provision of end-of-life care for older people in acute and long-stay care settings in Ireland and to construct a model of these.
Journal ArticleDOI
Developing a national quality register in end-of-life care: the Swedish experience.
TL;DR: It is shown that it is feasible to establish a national quality register in end-of-life care and collect data through a web-based system and will show in what way this initiative can lead to improved quality of life for patients and their families.
References
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Journal ArticleDOI
The growing burden of tuberculosis: global trends and interactions with the HIV epidemic.
Elizabeth L. Corbett,Catherine J. Watt,Neff Walker,Dermot Maher,Brian G. Williams,Mario C. Raviglione,Christopher Dye +6 more
TL;DR: The prevention of HIV and TB, the extension of WHO DOTS programs, and a focused effort to control HIV-related TB in areas of high HIV prevalence are matters of great urgency.
Journal ArticleDOI
Family perspectives on end-of-life care at the last place of care.
Joan M. Teno,Brian R. Clarridge,Virginia Casey,Lisa C. Welch,Terrie Wetle,Renée R. Shield,Vincent Mor +6 more
TL;DR: Many people dying in institutions have unmet needs for symptom amelioration, physician communication, emotional support, and being treated with respect, according to this evaluation of the US dying experience at home and in institutional settings.
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Quality End-of-Life Care: Patients' Perspectives
TL;DR: These domains, which characterize patients' perspectives on end-of-life care, can serve as focal points for improving the quality of end- of- life care.
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Patterns of functional decline at the end of life.
TL;DR: To determine if functional decline differs among 4 types of illness trajectories: sudden death, cancer death, death from organ failure, and frailty, Cohort analysis of data from 4 US regions in theEPESE study found Trajectories of functional decline at the end of life are quite variable.
Journal ArticleDOI
In search of a good death: observations of patients, families, and providers.
Karen E. Steinhauser,Elizabeth C. Clipp,Maya McNeilly,Nicholas A. Christakis,Lauren M. McIntyre,James A. Tulsky +5 more
TL;DR: This study describes the attributes of a good death, as understood by various participants in end-of-life care, and compared the perspectives of different groups of persons who had experienced death in their personal or professional lives.