Systematic Review of Quantitative Measures of Stakeholder Engagement
TLDR
The utility of stakeholder engagement has been well established in the literature, but there are few examples of measurement and evaluation of the degree to which stakeholders are engaged in these activities and the impact of engagement on positive outcomes.Abstract:
Stakeholder engagement in research has received increasing attention in recent years1, 2 The term “stakeholder engagement” refers to the process of meaningful involvement of those who are engaged in making decisions about programs3 Engaging members of the target population is often key to improving the relevance of the issues studied, the procedures used for study, and the interpretation of outcomes of research studies, health promotion activities, and disease prevention initiatives4, 5, 6 The utility of stakeholder engagement has been well established in the literature,7, 8, 9 but there are few examples of measurement and evaluation of the degree to which stakeholders are engaged in these activities and the impact of engagement on positive outcomes These types of evaluations have been limited in scope, and largely focused on qualitative approaches10, 11, 12, 13, 14 Qualitative methods cannot be easily compared across programs or institutions15 Necessary reliability and validity information describing self‐reported levels of stakeholder engagement are also lacking, and is essential to identifying the impact of engagement on the scientific process and scientific discoveryread more
Citations
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Journal ArticleDOI
Patient and public engagement in research and health system decision making: A systematic review of evaluation tools
Antoine Boivin,Audrey L’Espérance,François-Pierre Gauvin,Vincent Dumez,Ann C. Macaulay,Pascale Lehoux,Julia Abelson +6 more
TL;DR: Reviews looking at evaluation tools for patient engagement in individual decision making do exist, but no similar articles in research and health systems have been published.
Journal ArticleDOI
Partnerships, Processes, and Outcomes: A Health Equity-Focused Scoping Meta-Review of Community-Engaged Scholarship
Kasim Ortiz,Jacob L Nash,Logan Shea,John G. Oetzel,Justin Garoutte,Justin Garoutte,Shannon Sanchez-Youngman,Nina Wallerstein +7 more
TL;DR: This article seeks to synthesize the extant literature of systematic reviews, scoping reviews, and other related reviews regarding the context, processes, and research designs and interventions underlying CEnR that optimize its effectiveness.
Journal ArticleDOI
Stakeholder engagement to inform HIV clinical trials: a systematic review of the evidence
TL;DR: A systematic review examines stakeholder engagement for HIV clinical trials and compares it to the recommendations of the UNAIDS/AVAC Good Participatory Practice (GPP) guidelines.
Journal ArticleDOI
Evaluating community engagement in research: quantitative measure development
Melody S. Goodman,Vetta L. Sanders Thompson,Cassandra Arroyo Johnson,Renee Gennarelli,Bettina F. Drake,Pravleen Bajwa,Maranda Witherspoon,Deborah J. Bowen +7 more
TL;DR: A quantitative community engagement measure was developed, aligned with 11 engagement principles (EPs) previously established in the literature, which determines the level of community engagement, which can be correlated with other research outcomes.
Journal ArticleDOI
Rules of engagement: perspectives on stakeholder engagement for genomic biobanking research in South Africa.
TL;DR: CE is time-consuming and often requires an interdisciplinary research team approach, however careful planning of the engagement strategy, including an understanding of the differing layers of stakeholder engagement, and the specific educational needs at each layer, can help in the development of a relationship based on trust between the research team and various stakeholder groups.
References
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Engaging the community in coalition efforts to address childhood asthma.
Jane W. Peterson,Laurie Lachance,Frances D. Butterfoss,Christy R. Houle,Elisa A. Nicholas,Lisa A. Gilmore,Marielena Lara,Amy R. Friedman +7 more
TL;DR: Across coalitions, factors that were identified as important for community involvement included establishing a commitment to community involvement, building trust, making participation feasible and comfortable, and responding to community identified needs.
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Engaging communities in education and research: PBRNs, AHEC, and CTSA.
John M. Westfall,Beth Ingram,Daniel Navarro,Deidre Magee,Linda Niebauer,Linda Zittleman,Douglas H. Fernald,Wilson D. Pace +7 more
TL;DR: This research highlights the importance of community engagement in medical research and how it can be an important component of the Clinical and Translational Science Awards program.
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Community Engagement: An Essential Component of Well-Being in Older African-American Adults:
TL;DR: It is proposed that community engagement or “participation” mediates the relationship between neighborhood conditions and well-being for older African Americans living in Detroit.
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Mediated Modeling: Using Collaborative Processes to Integrate Scientist and Stakeholder Knowledge about Greenhouse Gas Emissions in an Urban Ecosystem
TL;DR: In this article, a participatory process called mediated modeling is used to enable diverse stakeholders to use systems modeling to understand the multidimensional, dynamic, and interactive aspects of environmental problems.
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Community Treatment Orders: Beyond Hospital Utilization Rates Examining the Association of Community Treatment Orders with Community Engagement and Supportive Housing
TL;DR: A significant increase in the number of community services and a shift to supportive housing arrangements was found for patients following issuance of a CTO.
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