Web 2.0 Chronic Disease Self-Management for Older Adults: A Systematic Review
Michael Stellefson,Beth H. Chaney,Adam E. Barry,Enmanuel Chavarria,Bethany Tennant,Kim Walsh-Childers,P. S. Sriram,Justin Zagora +7 more
TLDR
There is need for a greater understanding of the costs and benefits associated with using patient-centered Web 2.0 technologies for chronic disease self-management, and whether the long-term effectiveness of these programs is sustainable among larger, more diverse samples of chronically ill patients.Abstract:
Background: Participatory Web 2.0 interventions promote collaboration to support chronic disease self-management. Growth in Web 2.0 interventions has led to the emergence of e-patient communication tools that enable older adults to (1) locate and share disease management information and (2) receive interactive healthcare advice. The evolution of older e-patients contributing to Web 2.0 health and medical forums has led to greater opportunities for achieving better chronic disease outcomes. To date, there are no review articles investigating the planning, implementation, and evaluation of Web 2.0 chronic disease self-management interventions for older adults. Objective: To review the planning, implementation, and overall effectiveness of Web 2.0 self-management interventions for older adults (mean age ≥ 50) with one or more chronic disease(s). Methods: A systematic literature search was conducted using six popular health science databases. The RE-AIM (Reach, Efficacy, Adoption, Implementation and Maintenance) model was used to organize findings and compute a study quality score (SQS) for 15 reviewed articles. Results: Most interventions were adopted for delivery by multidisciplinary healthcare teams and tested among small samples of white females with diabetes. Studies indicated that Web 2.0 participants felt greater self-efficacy for managing their disease(s) and benefitted from communicating with health care providers and/or website moderators to receive feedback and social support. Participants noted asynchronous communication tools (eg, email, discussion boards) and progress tracking features (eg, graphical displays of uploaded personal data) as being particularly useful for self-management support. Despite high attrition being noted as problematic, this review suggests that greater Web 2.0 engagement may be associated with improvements in health behaviors (eg, physical activity) and health status (eg, HRQoL). However, few studies indicated statistically significant improvements in medication adherence, biological outcomes, or health care utilization. Mean SQS scores were notably low (mean=63%, SD 18%). Studies were judged to be weakest on the Maintenance dimension of RE-AIM; 13 reviewed studies (87%) did not describe any measures taken to sustain Web 2.0 effects past designated study time periods. Detailed process and impact evaluation frameworks were also missing in almost half (n=7) of the reviewed interventions. Conclusions: There is need for a greater understanding of the costs and benefits associated with using patient-centered Web 2.0 technologies for chronic disease self-management. More research is needed to determine whether the long-term effectiveness of these programs is sustainable among larger, more diverse samples of chronically ill patients. The effective translation of new knowledge, social technologies, and engagement techniques will likely result in novel approaches for empowering, engaging, and educating older adults with chronic disease. [J Med Internet Res 2013;15(2):e35]read more
Citations
More filters
Journal ArticleDOI
eHealth Literacy and Web 2.0 Health Information Seeking Behaviors Among Baby Boomers and Older Adults
Bethany Tennant,Michael Stellefson,Virginia J. Dodd,Beth H. Chaney,Don Chaney,Samantha R. Paige,Julia M. Alber +6 more
TL;DR: Being younger and possessing more education was associated with greater eHealth literacy among baby boomers and older adults and females and those highly educated, particularly at the post graduate level, reported greater use of Web 2.0 for health information.
Journal ArticleDOI
2017 National Standards for Diabetes Self-Management Education and Support:
Joni Beck,Deborah A Greenwood,Lori Blanton,Sandra T. Bollinger,Marcene K. Butcher,Jo Ellen Condon,Marjorie Cypress,Priscilla Faulkner,Amy Hess Fischl,Theresa Francis,Leslie E. Kolb,Jodi Lavin-Tompkins,Janice MacLeod,Melinda D. Maryniuk,Carolé Mensing,Eric A. Orzeck,David D. Pope,Jodi L. Pulizzi,Ardis A. Reed,Andrew S. Rhinehart,Linda Siminerio,Jing Wang +21 more
TL;DR: Even with the abundance of evidence supporting the benefits of DSMES, it continues to be underutilized, but as with other health care services, technology is changing the way DSMES is delivered and utilized with positive outcomes.
Journal ArticleDOI
The Effect of Social Support Features and Gamification on a Web-Based Intervention for Rheumatoid Arthritis Patients: Randomized Controlled Trial
TL;DR: Evidence is provided demonstrating the potential positive effect of gamification and online social support on health and behavioral outcomes and the Web-based intervention had a positive impact on intervention groups compared to the control group.
Journal ArticleDOI
The eHealth Enhanced Chronic Care Model: A Theory Derivation Approach
TL;DR: A revised model, the eHealth Enhanced Chronic Care Model (eCCM), is presented to show how eHealth tools can be used to increase efficiency of how patients manage their own chronic illnesses, and offers insight into the role of e health tools in self-management support for people with chronic conditions.
Journal ArticleDOI
2017 National Standards for Diabetes Self-Management Education and Support
Joni Beck,Deborah A Greenwood,Lori Blanton,Sandra T. Bollinger,Marcene K. Butcher,Jo Ellen Condon,Marjorie Cypress,Priscilla Faulkner,Amy Hess Fischl,Theresa Francis,Leslie E. Kolb,Jodi Lavin-Tompkins,Janice MacLeod,Melinda D. Maryniuk,Carolé Mensing,Eric A. Orzeck,David D. Pope,Jodi L. Pulizzi,Ardis A. Reed,Andrew S. Rhinehart,Linda Siminerio,Jing Wang +21 more
TL;DR: These Standards provide evidence for all diabetes self-management education providers including those that do not plan to seek reimbursement for DSMES, and identify the need to provide person-centered services that embrace the ever-increasing technological engagement platforms and systems.
References
More filters
Book
Self-Efficacy: The Exercise of Control
TL;DR: SelfSelf-Efficacy (SE) as discussed by the authors is a well-known concept in human behavior, which is defined as "belief in one's capabilities to organize and execute the courses of action required to produce given attainments".
Journal ArticleDOI
Evaluating the public health impact of health promotion interventions: the RE-AIM framework.
TL;DR: A model for evaluating public health interventions that assesses 5 dimensions: reach, efficacy, adoption, implementation, implementation and maintenance is proposed (termed the RE-AIM model).
Journal ArticleDOI
Self-management education: history, definition, outcomes, and mechanisms.
Kate Lorig,Halsted R. Holman +1 more
TL;DR: Evidence of the effectiveness of self-management interventions is presented and a possible mechanism, self-efficacy, through which these interventions work are posited.
Journal ArticleDOI
Using the Internet to promote health behavior change: A systematic review and meta-analysis of the impact of theoretical basis, use of behavior change techniques, and mode of delivery on efficacy
TL;DR: The present review provides a framework for the development of a science of Internet-based interventions and provides a rationale for investing in more intensive theory- based interventions that incorporate multiple behavior change techniques and modes of delivery.
Related Papers (5)
Self-management education: history, definition, outcomes, and mechanisms.
Kate Lorig,Halsted R. Holman +1 more