Comparison of Healthcare Experiences in Autistic and Non-Autistic Adults: A Cross-Sectional Online Survey Facilitated by an Academic-Community Partnership
Christina Nicolaidis,Dora Raymaker,Dora Raymaker,Katherine E. McDonald,Sebastian Dern,Cody Boisclair,Elesia Ashkenazy,Amelia E.V. Baggs +7 more
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TLDR
A CBPR approach may facilitate the inclusion of people with disabilities in research by increasing researchers’ ability to create accessible data collection instruments and after adjustment for demographic characteristics, health insurance, and overall health status.Abstract:
BACKGROUND
Little is known about the healthcare experiences of adults on the autism spectrum. Moreover, autistic adults have rarely been included as partners in autism research.read more
Citations
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The health status of adults on the autism spectrum
Lisa A. Croen,Ousseny Zerbo,Yinge Qian,Maria L. Massolo,Steve Rich,Stephen Sidney,Clarissa Kripke +6 more
TL;DR: Nearly all medical conditions were significantly more common in adults with autism, including immune conditions, gastrointestinal and sleep disorders, seizure, obesity, dyslipidemia, hypertension, and diabetes.
Journal ArticleDOI
Autism spectrum disorder
Catherine Lord,Traolach S. Brugha,Tony Charman,James C. Cusack,Guillaume Dumas,Thomas W. Frazier,Emily J.H. Jones,Rebecca M. Jones,Andrew Pickles,Matthew W. State,Julie Lounds Taylor,Jeremy Veenstra-VanderWeele +11 more
TL;DR: This Primer by Lord and colleagues reviews the epidemiology, mechanisms, clinical detection and treatment of autism and identifies the long-term needs of people with autism.
Journal ArticleDOI
Measuring autistic traits in the general population: a systematic review of the Autism-Spectrum Quotient (AQ) in a nonclinical population sample of 6,900 typical adult males and females
Emily Ruzich,Carrie Allison,Paula Smith,Peter Watson,Bonnie Auyeung,Howard Ring,Simon Baron-Cohen +6 more
TL;DR: A comprehensive systematic review of the literature was performed to estimate a reliable mean AQ score in individuals without a diagnosis of an autism spectrum condition (ASC) and establish average AQ scores based on a systematic review, for populations of adult males and females with and without ASC.
Journal ArticleDOI
Making the future together: Shaping autism research through meaningful participation
Sue Fletcher-Watson,Jon Adams,Kabie Brook,Tony Charman,Laura Crane,James C. Cusack,Susan R. Leekam,Damian Milton,Jeremy R. Parr,Elizabeth Pellicano +9 more
TL;DR: It is called for the development of participatory research skills among the autism research community and the facilitation of greater autistic leadership of, and partnership in, research to lead to better translation into practice and improved outcomes for autistic people and those who support them.
Journal ArticleDOI
“Respect the way I need to communicate with you”: Healthcare experiences of adults on the autism spectrum
Christina Nicolaidis,Christina Nicolaidis,Dora Raymaker,Elesia Ashkenazy,Katherine E. McDonald,Sebastian Dern,Amelia E.V. Baggs,Steven K. Kapp,Michael Weiner,W. Cody Boisclair +9 more
TL;DR: An in-depth understanding of autistic adults’ experiences with healthcare and their recommendations for improving care is obtained to empower patients, adequately train providers, increase the accessibility of the healthcare system, and decrease discrimination.
References
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TL;DR: The Autism-Spectrum Quotient is a valuable instrument for rapidly quantifying where any given individual is situated on the continuum from autism to normality, and its potential for screening for autism spectrum conditions in adults of normal intelligence remains to be fully explored.
Journal ArticleDOI
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