Methodology used in comparative studies assessing programmes of transition from paediatrics to adult care programmes: a systematic review
E. Le Roux,H. Mellerio,Sophie Guilmin-Crepon,S. Gottot,Paul Jacquin,Rym Boulkedid,Corinne Alberti +6 more
TLDR
Systematic review of comparative studies assessing transition to adult care interventions for young people with chronic conditions identified areas for improvement in terms of randomisation, recruitment and external validity, blinding, measurement validity, standardised assessment and reporting.Abstract:
Objective To explore the methodologies employed in studies assessing transition of care interventions, with the aim of defining goals for the improvement of future studies. Design Systematic review of comparative studies assessing transition to adult care interventions for young people with chronic conditions. Data sources MEDLINE, EMBASE, ClinicalTrial.gov. Eligibility criteria for selecting studies 2 reviewers screened comparative studies with experimental and quasi-experimental designs, published or registered before July 2015. Eligible studies evaluate transition interventions at least in part after transfer to adult care of young people with chronic conditions with at least one outcome assessed quantitatively. Results 39 studies were reviewed, 26/39 (67%) published their final results and 13/39 (33%) were in progress. In 9 studies (9/39, 23%) comparisons were made between preintervention and postintervention in a single group. Randomised control groups were used in 9/39 (23%) studies. 2 (2/39, 5%) reported blinding strategies. Use of validated questionnaires was reported in 28% (11/39) of studies. In terms of reporting in published studies 15/26 (58%) did not report age at transfer, and 6/26 (23%) did not report the time of collection of each outcome. Conclusions Few evaluative studies exist and their level of methodological quality is variable. The complexity of interventions, multiplicity of outcomes, difficulty of blinding and the small groups of patients have consequences on concluding on the effectiveness of interventions. The evaluation of the transition interventions requires an appropriate and common methodology which will provide access to a better level of evidence. We identified areas for improvement in terms of randomisation, recruitment and external validity, blinding, measurement validity, standardised assessment and reporting. Improvements will increase our capacity to determine effective interventions for transition care.read more
Citations
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Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home
Patience H. White,W. Carl Cooley +1 more
TL;DR: This updated clinical report provides more practice-based quality improvement guidance on key elements of transition planning, transfer, and integration into adult care for all youth and young adults.
Journal ArticleDOI
A longitudinal, observational study of the features of transitional healthcare associated with better outcomes for young people with long-term conditions
Allan Colver,Allan Colver,Helen McConachie,A. Le Couteur,A. Le Couteur,Gail Dovey-Pearce,Kay D. Mann,Janet E. McDonagh,Janet E. McDonagh,Mark S. Pearce,Luke Vale,Hannah Merrick,Jeremy R. Parr,Jeremy R. Parr,Jeremy R. Parr +14 more
TL;DR: The hypothesis that exposures to nine recommended features of transitional healthcare were associated with better outcomes for young people with long-term conditions during transition from child-centred to adult-oriented health services was tested.
Journal ArticleDOI
Closing the Gap: Results of the Multicenter Canadian Randomized Controlled Trial of Structured Transition in Young Adults With Type 1 Diabetes
Tamara Spaic,Tamara Spaic,Tracy Robinson,Ellen B. Goldbloom,Ellen B. Goldbloom,Patricia H. Gallego,Patricia H. Gallego,Patricia H. Gallego,Irene Hramiak,Irene Hramiak,Margaret L. Lawson,Margaret L. Lawson,Janine Malcolm,Janine Malcolm,Jeffrey L. Mahon,Jeffrey L. Mahon,Deric Morrison,Amish Parikh,Angelo Simone,Robert Stein,Robert Stein,Artem Uvarov,Cheril Clarson,Cheril Clarson,Cheril Clarson +24 more
TL;DR: Transition support during this 18-month intervention was associated with increased clinic attendance, improved satisfaction with care, and decreased diabetes-related distress, but these benefits were not sustained 12 months after completion of the intervention.
Journal ArticleDOI
A qualitative study on the educational needs of young people with chronic conditions transitioning from pediatric to adult care.
Maxime Morsa,Pierre Lombrail,Bernard Boudailliez,Cécile Godot,Vincent Jeantils,Rémi Gagnayre +5 more
TL;DR: The educational needs of young people with diverse chronic conditions during their transition from pediatric to adult care are explored, finding that educational measures could focus on the acquisition of broad skills, while also being person-centered.
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