Journal ArticleDOI
Patient And Family Engagement: A Framework For Understanding The Elements And Developing Interventions And Policies
Kristin L. Carman,Pam Dardess,Maureen Maurer,Shoshanna Sofaer,Karen Adams,Christine Bechtel,Jennifer Sweeney +6 more
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TLDR
The levels at which patient engagement can occur across the health care system are discussed, from the direct care setting to incorporating patient engagement into organizational design, governance, and policy making.Abstract:
Patient and family engagement offers a promising pathway toward better-quality health care, more-efficient care, and improved population health. Since definitions of patient engagement and conceptions of how it works vary, we propose a framework. We first present the forms engagement can take, ranging from consultation to partnership. We discuss the levels at which patient engagement can occur across the health care system, from the direct care setting to incorporating patient engagement into organizational design, governance, and policy making. We also discuss the factors that influence whether and to what extent engagement occurs. We explore the implications of our multidimensional framework for the development of interventions and policies that support patient and family engagement, and we offer a research agenda to investigate how such engagement leads to improved outcomes.read more
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Our greatest untapped resource: our patients.
TL;DR: In rare diseases, this relationship between patients and professionals demands a new model of care, in which patients are active, valued partners in their own care and function not as 'enlightened self-interested' individuals but as experts by experience.
Journal ArticleDOI
Patient and family engagement strategies for children and adolescents with chronic diseases: A review of systematic reviews.
Brandon M. Smith,Ritu Sharma,Asar Das,Hanan Aboumatar,Samantha I. Pitts,Jeff Day,Katherine Holzhauer,Eric B Bass,Wendy L Bennett +8 more
TL;DR: In this paper, the authors identify available evidence from systematic reviews on engagement strategies used to help children, adolescents, and their caregivers manage chronic conditions, and identify gaps in the literature.
Journal ArticleDOI
Articulating citizen participation in national anti-microbial resistance plans: a comparison of European countries.
TL;DR: The positioning and implied responsibilities of citizens in current European AMR plans are not fully articulated and documents could employ direct language to emphasise social or collective responsibilities in optimal antibiotic use.
Journal ArticleDOI
Strategies for involving patients and the public in scaling-up initiatives in health and social services: protocol for a scoping review and Delphi survey
Ali Ben Charif,Karine V. Plourde,Sabrina Guay-Bélanger,Hervé Tchala Vignon Zomahoun,Hervé Tchala Vignon Zomahoun,Amédé Gogovor,Sharon E. Straus,Sharon E. Straus,Ron Beleno,Kathy Kastner,Robert McLean,Robert McLean,Andrew Milat,Andrew Milat,Luke Wolfenden,Jean-Sébastien Paquette,Friedemann Geiger +16 more
TL;DR: In this paper, the authors proposed to identify relevant strategies for meaningfully and equitably involving patients and the public in the science and practice of scaling up in health and social services (HSS).
References
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Journal ArticleDOI
Effectiveness of strategies for informing, educating, and involving patients
Angela Coulter,Jo Ellins +1 more
TL;DR: C Coulter and Ellins as mentioned in this paper argue that any strategy to reduce health inequalities must promote health literacy and evidence that strategies to strengthen patient engagement are effective is substantial, argue Angela Coulter and Jo Ellins.
Journal ArticleDOI
Patient engagement--what works?
TL;DR: The evidence in support of the most promising interventions designed to help patients play an effective role in their own health care is outlined.
Journal ArticleDOI
Patient centeredness in medical encounters requiring an interpreter.
TL;DR: Spanish-speaking patients are at a double disadvantage in encounters with English-speaking physicians: these patients make fewer comments, and the ones they do make are more likely to be ignored, which may result in lower adherence rates and poorer medical outcomes among Spanish- speaking patients.
Journal ArticleDOI
Toward a theory of patient and consumer activation
TL;DR: The findings indicate that activation is linked with the experience of positive and negative emotion in daily life and effective educational efforts should focus on improving self-efficacy and the individual's self-concept as a self-manager.
Journal ArticleDOI
Family-centered Multidisciplinary Rounds Enhance the Team Approach in Pediatrics
TL;DR: Family-centered multidisciplinary rounds is a method of conducting inpatient hospital rounds that fosters teamwork and empowers hospital staff and its impact on staff satisfaction and the family's ability to participate in their care is significant.
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