Journal ArticleDOI
Patient And Family Engagement: A Framework For Understanding The Elements And Developing Interventions And Policies
Kristin L. Carman,Pam Dardess,Maureen Maurer,Shoshanna Sofaer,Karen Adams,Christine Bechtel,Jennifer Sweeney +6 more
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TLDR
The levels at which patient engagement can occur across the health care system are discussed, from the direct care setting to incorporating patient engagement into organizational design, governance, and policy making.Abstract:
Patient and family engagement offers a promising pathway toward better-quality health care, more-efficient care, and improved population health. Since definitions of patient engagement and conceptions of how it works vary, we propose a framework. We first present the forms engagement can take, ranging from consultation to partnership. We discuss the levels at which patient engagement can occur across the health care system, from the direct care setting to incorporating patient engagement into organizational design, governance, and policy making. We also discuss the factors that influence whether and to what extent engagement occurs. We explore the implications of our multidimensional framework for the development of interventions and policies that support patient and family engagement, and we offer a research agenda to investigate how such engagement leads to improved outcomes.read more
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Measuring patient activation in Italy: Translation, adaptation and validation of the Italian version of the patient activation measure 13 (PAM13-I)
TL;DR: The PAM13-I has been demonstrated to be a valid and reliable measure of patient activation and its applicability to the Italian-speaking chronic patient population is suggested, although it presents a different ranking order of the items comparing to the American version.
Journal ArticleDOI
Features and usability assessment of a patient-centered mobile application (HeartMapp) for self-management of heart failure
Ponrathi Athilingam,Miguel A. Labrador,Elizabeth Frances J. Remo,Laureen Mack,Alyanna Bianca San Juan,Amanda F. Elliott +5 more
TL;DR: Having access to CHF symptom monitoring and education readily available in a mobile app may motivate individuals to engage in the prescribed self-management skills to ultimately attain desired outcomes, which warrants further exploration.
Posted Content
Effectiveness of Public Deliberation Methods for Gathering Input on Issues in Healthcare: Findings from a Randomized Trial
Kristin L. Carman,Coretta Mallery,Maureen Maurer,Grace Wang,Steven Garfinkel,Manshu Yang,Dierdre Gilmore,Amy Windham,Marge Ginsburg,Shoshanna Sofaer,Marthe R. Gold,Ela Pathak-Sen,Todd Davies,Joanna E. Siegel,Rikki Mangrum,Jessica Fernandez,Jennifer Richmond,James S. Fishkin,Alice Siu +18 more
TL;DR: The Deliberative Methods Demonstration as discussed by the authors examined the effectiveness of public deliberation for obtaining informed public input regarding the role of medical evidence in U.S. healthcare and found that participating in deliberation increased participants' knowledge of evidence and comparative effectiveness research and shifted participants' attitudes regarding the importance of evidence in decision-making.
Journal ArticleDOI
An integrative transformative service framework to improve engagement in a social service ecosystem: the case of He Waka Tapu
TL;DR: In this paper, an exploratory study that reports on the engagement between a social service provider and its clients in a dedicated Māori (indigenous) context by employing an integrative research approach combining transformative service research, activity theory and engagement theory is presented.
Journal ArticleDOI
Defining Patient Engagement in Research: Results of a Systematic Review and Analysis: Report of the ISPOR Patient-Centered Special Interest Group
Rachel Harrington,Maya L. Hanna,EM Oehrlein,Rob Camp,Russell Wheeler,Clarissa Cooblall,Theresa Tesoro,Amie M. Scott,Rainald von Gizycki,Francis Nguyen,Asha Hareendran,Donald L. Patrick,Eleanor M. Perfetto +12 more
TL;DR: This study identified themes within existing definitions related to patient engagement and proposes a scalable consensus definition of "patient engagement in research" based on an analysis of existing literature and review by patient, industry, and academic stakeholders.
References
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Journal ArticleDOI
Effectiveness of strategies for informing, educating, and involving patients
Angela Coulter,Jo Ellins +1 more
TL;DR: C Coulter and Ellins as mentioned in this paper argue that any strategy to reduce health inequalities must promote health literacy and evidence that strategies to strengthen patient engagement are effective is substantial, argue Angela Coulter and Jo Ellins.
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Patient engagement--what works?
TL;DR: The evidence in support of the most promising interventions designed to help patients play an effective role in their own health care is outlined.
Journal ArticleDOI
Patient centeredness in medical encounters requiring an interpreter.
TL;DR: Spanish-speaking patients are at a double disadvantage in encounters with English-speaking physicians: these patients make fewer comments, and the ones they do make are more likely to be ignored, which may result in lower adherence rates and poorer medical outcomes among Spanish- speaking patients.
Journal ArticleDOI
Toward a theory of patient and consumer activation
TL;DR: The findings indicate that activation is linked with the experience of positive and negative emotion in daily life and effective educational efforts should focus on improving self-efficacy and the individual's self-concept as a self-manager.
Journal ArticleDOI
Family-centered Multidisciplinary Rounds Enhance the Team Approach in Pediatrics
TL;DR: Family-centered multidisciplinary rounds is a method of conducting inpatient hospital rounds that fosters teamwork and empowers hospital staff and its impact on staff satisfaction and the family's ability to participate in their care is significant.
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