Journal ArticleDOI
Patient And Family Engagement: A Framework For Understanding The Elements And Developing Interventions And Policies
Kristin L. Carman,Pam Dardess,Maureen Maurer,Shoshanna Sofaer,Karen Adams,Christine Bechtel,Jennifer Sweeney +6 more
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TLDR
The levels at which patient engagement can occur across the health care system are discussed, from the direct care setting to incorporating patient engagement into organizational design, governance, and policy making.Abstract:
Patient and family engagement offers a promising pathway toward better-quality health care, more-efficient care, and improved population health. Since definitions of patient engagement and conceptions of how it works vary, we propose a framework. We first present the forms engagement can take, ranging from consultation to partnership. We discuss the levels at which patient engagement can occur across the health care system, from the direct care setting to incorporating patient engagement into organizational design, governance, and policy making. We also discuss the factors that influence whether and to what extent engagement occurs. We explore the implications of our multidimensional framework for the development of interventions and policies that support patient and family engagement, and we offer a research agenda to investigate how such engagement leads to improved outcomes.read more
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Journal ArticleDOI
Health Care Engagement of Limited English Proficient Latino Families: Lessons Learned from Advisory Board Development
Lisa Ross DeCamp,Sarah Polk,Marilyn Camacho Chrismer,Flor Giusti,Darcy A. Thompson,Erica Sibinga +5 more
TL;DR: A family advisory board of LEP Latino families was formed and a multimodal evaluation of initial implementation and partnership development met process measures goals for sustained engagement and for establishing a group structure and process.
Partnering with Patients, Families, and Communities For Health: A Global Imperative
TL;DR: Education of the public and health professionals is one of six areas in the Global Health Partnership Framework described in this report; the others are research, community health, direct care, organizational design and governance, and public policy.
Dissertation
Approche psychosociale de la gestion du risque VIH des Hommes ayant des rapports Sexuels avec des Hommes (HSH) dans un essai de prévention biomédicale communautaire (ANRS-IPERGAY)
TL;DR: In this paper, the authors investigated the effect of the use of PrEP on the perception of a VIH patient in the context of a sexual relationship with a partner in the treatment of the VIH.
Journal ArticleDOI
Patient Engagement: The Quebec Path.
Marie-Pascale Pomey,Paule Lebel +1 more
TL;DR: In this commentary, the authors share some of the avenues that have been taken in Quebec to structure patient engagement in a comprehensive way within and across stakeholder and patient populations.
Journal ArticleDOI
"Keep it simple": older African Americans' preferences for a health literacy intervention in HIV management.
TL;DR: Future interventions that target minorities and older adults living with HIV should consider patients’ learning needs, sex-specific and mental health needs, and delivery approaches, in order to increase uptake and improve disease management and health outcomes.
References
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Journal ArticleDOI
Effectiveness of strategies for informing, educating, and involving patients
Angela Coulter,Jo Ellins +1 more
TL;DR: C Coulter and Ellins as mentioned in this paper argue that any strategy to reduce health inequalities must promote health literacy and evidence that strategies to strengthen patient engagement are effective is substantial, argue Angela Coulter and Jo Ellins.
Journal ArticleDOI
Patient engagement--what works?
TL;DR: The evidence in support of the most promising interventions designed to help patients play an effective role in their own health care is outlined.
Journal ArticleDOI
Patient centeredness in medical encounters requiring an interpreter.
TL;DR: Spanish-speaking patients are at a double disadvantage in encounters with English-speaking physicians: these patients make fewer comments, and the ones they do make are more likely to be ignored, which may result in lower adherence rates and poorer medical outcomes among Spanish- speaking patients.
Journal ArticleDOI
Toward a theory of patient and consumer activation
TL;DR: The findings indicate that activation is linked with the experience of positive and negative emotion in daily life and effective educational efforts should focus on improving self-efficacy and the individual's self-concept as a self-manager.
Journal ArticleDOI
Family-centered Multidisciplinary Rounds Enhance the Team Approach in Pediatrics
TL;DR: Family-centered multidisciplinary rounds is a method of conducting inpatient hospital rounds that fosters teamwork and empowers hospital staff and its impact on staff satisfaction and the family's ability to participate in their care is significant.
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