Processes for evidence summarization for patient decision aids: A Delphi consensus study
Peter Scalia,Catherine H. Saunders,Michelle D Dannenberg,Anik Giguère,Brian S. Alper,Tammy Hoffmann,Lilisbeth Perestelo-Pérez,Marie-Anne Durand,Glyn Elwyn +8 more
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In this paper, the authors present a two-round modified Delphi survey, where participants were asked to rate each potential criterion (omit, possible, desirable, essential) and provide qualitative feedback.Abstract:
Background Patient decision aids (PDAs) should provide evidence-based information so patients can make informed decisions. Yet, PDA developers do not have an agreed-upon process to select, synthesize and present evidence in PDAs. Objective To reach the consensus on an evidence summarization process for PDAs. Design A two-round modified Delphi survey. Setting and participants A group of international experts in PDA development invited developers, scientific networks, patient groups and listservs to complete Delphi surveys. Data collection We emailed participants the study description and a link to the online survey. Participants were asked to rate each potential criterion (omit, possible, desirable, essential) and provide qualitative feedback. Analysis Criteria in each round were retained if rated by >80% of participants as desirable or essential. If two or more participants suggested rewording, reordering or merging, the steering group considered the suggestion. Results Following two Delphi survey rounds, the evidence summarization process included defining the decision, reporting the processes and policies of the evidence summarization process, assembling the editorial team and managing (collect, manage, report) their conflicts of interest, conducting a systematic search, selecting and appraising the evidence, presenting the harms and benefits in plain language, and describing the method of seeking external review and the plan for updating the evidence (search, selection and appraisal of new evidence). Conclusion A multidisciplinary stakeholder group reached consensus on an evidence summarization process to guide the creation of high-quality PDAs. Patient contribution A patient partner was part of the steering group and involved in the development of the Delphi survey.read more
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Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement
TL;DR: Moher et al. as mentioned in this paper introduce PRISMA, an update of the QUOROM guidelines for reporting systematic reviews and meta-analyses, which is used in this paper.
Cochrane Handbook for Systematic Reviews of Interventions, Version 5.1.0. The Cochrane Collaboration
Journal ArticleDOI
Decision aids for people facing health treatment or screening decisions
Dawn Stacey,Dawn Stacey,Krystina B. Lewis,Michael J. Barry,Carol Bennett,Karen Eden,Margaret Holmes-Rovner,Hilary A. Llewellyn-Thomas,Anne Lyddiatt,Richard Thomson,Lyndal Trevena +10 more
TL;DR: Decision aids reduced the proportion of undecided participants and appeared to have a positive effect on patient-clinician communication, and those exposed to a decision aid were either equally or more satisfied with their decision, the decision-making process, and the preparation for decision making compared to usual care.
Journal ArticleDOI
Developing a quality criteria framework for patient decision aids: online international Delphi consensus process
Glyn Elwyn,Annette M. O'Connor,Dawn Stacey,Robert J. Volk,Adrian Edwards,Angela Coulter,Richard Thomson,Alexandra Barratt,Michael J. Barry,Steven J. Bernstein,Phyllis Butow,Aileen Clarke,Vikki Entwistle,Deb Feldman-Stewart,Margaret Holmes-Rovner,Hilary A. Llewellyn-Thomas,Nora Moumjid,Albert G. Mulley,Cornelia M. Ruland,Karen Sepucha,Alan Sykes,Timothy J. Whelan +21 more
TL;DR: Criteria were given the highest ratings where evidence existed, and these were retained, and developers, users, and purchasers of patient decision aids now have a checklist for appraising quality.
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