Journal ArticleDOI
Support to family carers of patients with frontotemporal dementia
TLDR
These family carers tend to be less satisfied with the provision of support they received from the specialist health service compared to carers of Alzheimer's disease patients, and are in need of more, and other forms of support.Abstract:
Objectives: To examine the provision of support to patients with frontotemporal dementia (FTD) and their family carers compared with patients with early onset Alzheimer's dementia (AD) and their carers, and the carers’ satisfaction with the support. Method: Data came from 60 dyads of patients with dementia and their principal family carers, 23 subjects with frontotemporal dementia and their 23 carers, and 37 subjects with early onset Alzheimer's disease and their 37 carers. Results: Patients with a frontotemporal dementia diagnosis were significantly more frequently offered stays in nursing homes (p = 0.04). Carers of patients with frontotemporal dementia were significantly less satisfied with the provision of information about the disease compared with carers of early onset Alzheimer's disease patients (p = 0.05) and were significantly less satisfied with counseling and follow-up advice (p = 0.05). Conclusion: Changes of personality in patients with frontotemporal dementia may be the major reason why the...read more
Citations
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Journal ArticleDOI
Family caregivers of people with dementia
Henry Brodaty,Marika Donkin +1 more
TL;DR: Comprehensive management of the patient with dementia includes building a partnership between health professionals and family caregivers, referral to Alzheimer's Associations, and psychosocial interventions where indicated.
Journal ArticleDOI
Frontotemporal Dementia An Updated Clinician’s Guide
TL;DR: Today, frontotemporal dementia (FTD) remains one of the most common forms of early-onset dementia, that is, before the age of 65, thus posing several diagnostic challenges to clinicians.
Seeing the wood for the trees. Carer related research and knowledge: A scoping review
TL;DR: A recent NIHR-SSCR funded scoping review provides a comprehensive mapping of what is known about carers and caring, and aims to help inform policy, practice and research in relation to carers.
Journal ArticleDOI
The impact of dementia severity on caregiver burden in frontotemporal dementia and Alzheimer disease.
Eneida Mioshi,David Foxe,Felicity V. C. Leslie,Sharon Savage,Sharpley Hsieh,Laurie A. Miller,John R. Hodges,John R. Hodges,Olivier Piguet,Olivier Piguet +9 more
TL;DR: This study is the first to show that caregivers of SemDem, PNFA, and AD patients show similar burden, while confirming that bvFTD caregivers show higher burden than AD caregivers, and demonstrates that burden worsens with disease progression in FTD.
Journal ArticleDOI
The care needs and experiences with the use of services of people with young-onset dementia and their caregivers: a systematic review
Joany Millenaar,Christian Bakker,Raymond T.C.M. Koopmans,Frans R.J. Verhey,Alexander Kurz,Marjolein E. de Vugt +5 more
TL;DR: The care needs and experiences of individuals with young‐onset dementia (YOD) and their caregivers were investigated and appropriate interventions and personalized care to address their specific needs and problems were investigated.
References
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Journal ArticleDOI
The Mini-Mental State Examination
TL;DR: The Mini-Mental State Examination was designed as a clinical method for grading cognitive impairment and produces a score that can be used to follow the course of patients or as a case detection technique after cutoff scores are established.
Journal ArticleDOI
A Family Intervention to Delay Nursing Home Placement of Patients With Alzheimer Disease: A Randomized Controlled Trial
TL;DR: A program of counseling and support can substantially increase the time spouse-caregivers are able to care for AD patients at home, particularly during the early to middle stages of dementia when nursing home placement is generally least appropriate.
Journal ArticleDOI
The prevalence and causes of dementia in people under the age of 65 years
TL;DR: The prevalence figures provided by this study will allow health planners to accurately estimate need and plan services and confirm previous “guestimates” of the number of younger people affected by dementia in UK.
Journal ArticleDOI
Improving caregiver well-being delays nursing home placement of patients with Alzheimer disease
TL;DR: Greater access to effective programs of counseling and support could yield considerable benefits for caregivers, patients with Alzheimer disease, and society.
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