The Portuguese Severe Asthma Registry: Development, Features, and Data Sharing Policies
Ana Sá-Sousa,João Fonseca,Ana Margarida Pereira,Ana Ferreira,Ana Arrobas,Ana Mendes,Marta Drummond,Wanda Videira,Tiago Costa,Pedro Farinha,José Soares,Pedro Rocha,Ana Todo-Bom,Anna Sokolova,António Costa,Beatriz Fernandes,Carla Chaves Loureiro,Cecília Longo,Cecília Pardal,Célia Costa,Cíntia Cruz,Cláudia Chaves Loureiro,Cláudia Chaves Loureiro,Cristina Lopes,Duarte Mesquita,Emília Faria,Eunice Magalhães,Fernando Menezes,Filipa Todo-Bom,Francisca Carvalho,Frederico S. Regateiro,Helena Falcão,Ivone Fernandes,João Gaspar-Marques,Jorge Viana,José Augusto Ferreira,José Manuel Silva,Laura Simão,Leonor Almeida,Lígia Fernandes,Lurdes Ferreira,Mafalda van Zeller,Márcia Quaresma,Margarida Castanho,Natália André,Nuno Cortesão,Paula Leiria-Pinto,Paula Leiria Pinto,Paula Rúbia Ferreira Rosa,Pedro Carreiro-Martins,Rita Gerardo,Rui Silva,Susana Lucas,Teresa Almeida,Teresa Calvo +54 more
TLDR
The Portuguese Severe Asthma Registry (RAG) is a national web-based disease registry of severe asthma patients that allows prospective clinical data collection, promotes standardized care and collaborative clinical research, and may contribute to inform evidence-based healthcare policies for severe asthma.Abstract:
Copyright © 2018 Ana Sa-Sousa et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.read more
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