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Sonja Praprotnik
Researcher at Ljubljana University Medical Centre
Publications - 95
Citations - 3238
Sonja Praprotnik is an academic researcher from Ljubljana University Medical Centre. The author has contributed to research in topics: Rheumatoid arthritis & Antibody. The author has an hindex of 28, co-authored 90 publications receiving 2697 citations. Previous affiliations of Sonja Praprotnik include University of Ljubljana & University of Paris-Sud.
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EULAR Sjögren's Syndrome Patient Reported Index (ESSPRI): development of a consensus patient index for primary Sjögren's syndrome
Raphaèle Seror,Philippe Ravaud,Xavier Mariette,Xavier Mariette,Hendrika Bootsma,Elke Theander,Arne Hansen,Manel Ramos-Casals,Thomas Doerner,Stefano Bombardieri,Eric Hachulla,Johan G. Brun,Aike A. Kruize,Sonja Praprotnik,Matija Tomšič,Jacques-Eric Gottenberg,Valérie Devauchelle,Salvatore deVita,C. Vollenweider,Thomas Mandl,Athanasios G. Tzioufas,Steven E. Carsons,Alain Saraux,Nurhan Sutcliffe,Claudio Vitali,Simon J Bowman +25 more
TL;DR: The EULAR SS Patient Reported Index is a very simple index designed to measure patients' symptoms in primary SS and has good construct validity and is well correlated with SSI and PROFAD.
Journal ArticleDOI
Defining disease activity states and clinically meaningful improvement in primary Sjögren's syndrome with EULAR primary Sjögren's syndrome disease activity (ESSDAI) and patient-reported indexes (ESSPRI)
Raphaèle Seror,Raphaèle Seror,Hendrika Bootsma,Alain Saraux,Simon J Bowman,Elke Theander,Johan G. Brun,Gabriel Baron,Véronique Le Guern,Valérie Devauchelle-Pensec,Manel Ramos-Casals,Valeria Valim,Thomas Dörner,Athanasios G. Tzioufas,Jacques-Eric Gottenberg,Roser Solans Laqué,Thomas Mandl,Eric Hachulla,Kathy L. Sivils,Wan-Fai Ng,Anne-Laure Fauchais,Stefano Bombardieri,Roberta Priori,Elena Bartoloni,Vincent Goëb,Sonja Praprotnik,Takayuki Sumida,Sumusu Nishiyama,Roberto Caporali,Aike A. Kruize,C. Vollenweider,Philippe Ravaud,Petra M. Meiners,Pilar Brito-Zerón,Claudio Vitali,Xavier Mariette +35 more
TL;DR: This study determined disease activity levels, PASS and MCII of ESSDAI and ESSPRI, which will help designing future clinical trials in SS and the proposal is to include patients with moderate activity and define response to treatment as an improvement of E SSDAI at least three points.
Journal ArticleDOI
EULAR Sjögren's syndrome disease activity index (ESSDAI): a user guide.
Raphaèle Seror,Simon J Bowman,Pilar Brito-Zerón,Elke Theander,Hendrika Bootsma,Athanasios G. Tzioufas,Jacques-Eric Gottenberg,Manel Ramos-Casals,Thomas Dörner,Philippe Ravaud,Claudio Vitali,Xavier Mariette,Karsten Asmussen,Soren Jacobsen,Elena Bartoloni,Roberto Gerli,Johannes W. Bijlsma,Aike A. Kruize,Stefano Bombardieri,Arthur Bookman,Cees Kallenberg,Petra M. Meiners,Johan G Brun,Roland Jonsson,Roberto Caporali,Steven E. Carsons,Salvatore De Vita,Nicoletta Del Papa,Valérie Devauchelle,Alain Saraux,Anne-Laure Fauchais,Jean Sibilia,Eric Hachulla,Gabor G. Illei,David Isenberg,Adrian Jones,Menelaos Manoussakis,Thomas Mandl,Lennart Jacobsson,Frederic Demoulins,Carlomaurizio Montecucco,Wan-Fai Ng,Sumusu Nishiyama,Roald Omdal,Ann Parke,Sonja Praprotnik,Matjia Tomsic,Elizabeth Price,Hal Scofield,Kathy L Sivils,Josef S Smolen,Roser Solans Laqué,Serge Steinfeld,Nurhan Sutcliffe,Takayuki Sumida,Guido Valesini,Valeria Valim,Frederick B Vivino,C. Vollenweider +58 more
TL;DR: A user guide for the ESSDAI is provided, which provides definitions and precisions on the rating of each domain, and includes some minor improvement of the score to integrate advance in knowledge of disease manifestations.
Journal ArticleDOI
Influence of geolocation and ethnicity on the phenotypic expression of primary Sjögren's syndrome at diagnosis in 8310 patients: a cross-sectional study from the Big Data Sjögren Project Consortium.
Pilar Brito-Zerón,Pilar Brito-Zerón,Nihan Acar-Denizli,Margit Zeher,Astrid Rasmussen,Raphaèle Seror,Elke Theander,Xiaomei Li,Chiara Baldini,Jacques-Eric Gottenberg,Debashish Danda,Luca Quartuccio,Roberta Priori,Gabriela Hernández-Molina,Aike A. Kruize,Valeria Valim,Marika Kvarnström,Damien Sène,Roberto Gerli,Sonja Praprotnik,David A. Isenberg,Roser Solans,Maureen Rischmueller,Seung Ki Kwok,Gunnel Nordmark,Yasunori Suzuki,Roberto Giacomelli,Valérie Devauchelle-Pensec,Michele Bombardieri,Benedikt Hofauer,Hendrika Bootsma,Johan G. Brun,Guadalupe Fraile,Steven E. Carsons,Tamer A. Gheita,Jacques Morel,Cristina Vollenveider,Fabiola Atzeni,Soledad Retamozo,Ildikó Horváth,Kathy L. Sivils,Thomas Mandl,Pulukool Sandhya,Salvatore De Vita,Jorge Sanchez-Guerrero,Eefje van der Heijden,Virginia Fernandes Moça Trevisani,Marie Wahren-Herlenius,Xavier Mariette,Manuel Ramos-Casals +49 more
TL;DR: This study provides the first evidence of a strong influence of geolocation and ethnicity on the phenotype of primary Sjögren's syndrome at diagnosis.