Showing papers in "Journal of Pain and Symptom Management in 2021"

TL;DR: The importance of developing optimal monitoring strategies to reduce fatigue and improve the quality of life of cancer patients is highlighted, with meta-regression identified female gender as a significant moderator for higher prevalence of fatigue, whereas mean age is not associated with fatigue.

TL;DR: In this paper, a sample of people bereaved through COVID-19 in the United States completed demographic questions and self-report measures of neuroticism; symptoms of depression, generalized anxiety, posttraumatic stress, separation distress, and dysfunctional grief; and functional impairment due to a COVID19 loss.

TL;DR: The response of and challenges faced by palliative care services during the COVID-19 pandemic, and identify associated factors were surveyed by as discussed by the authors. But, they did not identify the associated factors.

TL;DR: In this article, the authors examined the impact of remote communication on families' evaluation of end-of-life care during the COVID-19 pandemic and found that 81.3% of family members who offered positive comments about communication with either the patient or the health care team reported excellent overall endoflife care vs. 28.4% who made negative comments.

TL;DR: Heathcare workers recognize their responsibility to support the bereaved loved ones of our patients, but we also must attend to our own professional and personal grief in the COVID-19 pandemic as mentioned in this paper.

TL;DR: Assessment of refractory symptoms should include physical evaluation with standardised tools applied and interviews for psychological and existential evaluation by expert clinicians working in teams.

TL;DR: There is inconclusive evidence on the significance of immersive VR in reducing pain or anxiety for cancer patients undergoing medical interventions or receiving chemotherapy.

TL;DR: Physicians in Taiwan communicated about patient's impending death most frequently, and physicians in all 3 countries generally provided assurance to families that the patients would remain comfortable.

TL;DR: There is a strong need to consider the possibility of pain as a contributor to behavioural changes in aged care residents living with dementia.

TL;DR: A mixed-methods systematic review was conducted to identify spiritual care training programs for healthcare professionals or students, and to investigate program content, teaching methods, key outcomes, and identified challenges and facilitators as mentioned in this paper.

TL;DR: Knowing what parents value most about PPHC@Home provides the foundation for further exploration and conversation about priority areas for resource allocation and care improvement efforts.

TL;DR: Generally, children with cancer who received SPPC had improved symptom burden, pain control, and quality of life with decreased intensive procedures, increased completion of advance care planning and resuscitation status documentation, and fewer end-of-life intensive care stays with higher likelihood of dying at home.

TL;DR: Stable symptom clusters and evolving networks were identified and the most central symptom was fatigue; however, the paucity of studies which investigated symptom networks and central symptoms calls for further investigations on these phenomena.

TL;DR: A novel approach to identifying goals-of-care discussions in the EHR using NLP and ML techniques, which is better in inpatient-only samples than outpatient- only samples and represents a potential approach toward measuring goals- of-Care discussions as a research outcome and quality metric.

TL;DR: In the age of Covid-19, the awareness of being at the forefront of containing the pandemic along with the sense of responsibility toward their high-risk patients may arouse PCPs psychological distress, but, on the other hand, this condition may improve their sense of professional satisfaction and personal accomplishment.

TL;DR: Uncertainty among older patients with advanced cancer is associated with worse psychological health and QoL, and Tailored uncertainty management strategies are warranted.

TL;DR: Wang et al. as discussed by the authors assessed the mental health of Chinese adults recently bereaved due to COVID-19 and found that the recent loss of first degree relatives, feeling traumatized by the loss, and having a close and/or conflictual relationship with the deceased may elevate risk for these mental health problems, which could require indicated psychological treatment.

TL;DR: This paper conducted a systematic review of the literature in the English language from four databases through January 2020 and found that interventions targeting underrepresented groups can have significant and positive effects on advance directives and/or advance care planning-related outcomes.

TL;DR: In this article, a repeated cross-sectional, observational study collected data on palliative care patients in a large health system seen during the COVID-19 outbreak and compared it with pre-COVID data.

TL;DR: There is a critical need for specialized research on chronic cancer pain and opioid safety in cancer survivors, as the reviewed literature describes a relationship between LTOT and important biopsychosocial factors.

TL;DR: In this article, the authors conducted interviews and focus groups with adolescents and young adults with advanced cancer, parents of children with cancer, bereaved parents, and interdisciplinary healthcare professionals.

TL;DR: In this article, the authors describe the experiences of parents of children with severe neurologic impairment during decision-making and highlight the pervasiveness of parental decisionmaking efforts and parents' advocacy and vigilance regarding their child's needs.

TL;DR: In this paper, NLP text identification software with semi-automated chart review was applied to identify documentation of four ACP domains: conversations about goals of care, limitation of life-sustaining treatment, involvement of palliative care, and discussion of hospice.

TL;DR: There is a need for more research examining racial disparities in end-of-life care, especially in regions with a history of racial discrimination, as well as for informing healthcare decision making near the end of life for patients, families, and clinicians.

TL;DR: In this article, a multidisciplinary, multimodal treatment approach may optimize cachexia outcomes, including quality of life (QoL) and symptom burden, including QoL and symptoms over time among patients attending a multi-disciplinary clinical service for cancer cachexia.

TL;DR: F Females, Blacks, patients with high psychological stress, and patients more recently diagnosed were more likely to be in the High AE Prevalence group, and gender, age, race and time since diagnosis were associated with psychological stress.

TL;DR: In this article, a family liaison team (FLT) was formed by redeployed clinicians in critical care (CC) during the first surge of the 2020 COVID 19 pandemic.

TL;DR: Evaluating the preparedness and capacity of palliative care services in the Middle-East and North Africa region to respond to the COVID-19 pandemic suggests services have prepared to respond but may be limited by lack of staff support and resources.

TL;DR: Canadian health care providers described unique challenges in caring for patients who request MAID, along with practices to improve the quality of care, using a thematic analysis to identify primary and secondary themes in the interviews.

TL;DR: Its assessment in clinical routine could promote resource-oriented, patient-centered care and explore the theoretical models and psychometric properties of these instruments, in studies where these instruments were initially presented.