Models of care for survivors of childhood cancer from across the globe : Advancing survivorship care in the next decade
Emily S. Tonorezos,Dana Barnea,Richard J. Cohn,Monica Cypriano,Brice Fresneau,Riccardo Haupt,Lars Hjorth,Yasushi Ishida,Jarmila Kruseova,Claudia E. Kuehni,Purna Kurkure,Thorsten Langer,Paul C. Nathan,Jane Skeen,Roderick Skinner,Nurdan Tacyildiz,Marry M. van den Heuvel-Eibrink,Jeanette Falck Winther,Melissa M. Hudson,Kevin C. Oeffinger +19 more
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TLDR
Findings indicate that among pediatric-age survivors of childhood cancer, resources are generally available, and a large proportion of survivors are seen by a physician familiar with late effects in most countries, and combining risk-based and patient-oriented solutions for this population is likely to benefit both providers and patients.Abstract:
With improvements in cancer treatment and supportive care, a growing population of survivors of childhood cancer at risk for significant and potentially life-threatening late effects has been identified. To provide a current snapshot of the models of care from countries with varying levels of resources and health care systems, stakeholders in childhood cancer survivorship clinical care and research were identified from 18 countries across five continents. Stakeholders responded to a survey and provided a brief narrative regarding the current state of survivorship care. Findings indicate that among pediatric-age survivors of childhood cancer (allowing for differences in age cutoffs across countries), resources are generally available, and a large proportion of survivors are seen by a physician familiar with late effects in most countries. After survivors transition to adulthood, only a minority are seen by a physician familiar with late effects. Despite the need to improve communication between pediatric oncology and primary care, only a few countries have existing national efforts to educate primary care physicians, although many more reported that educational programs are in development. These data highlight common challenges and potential solutions for the lifelong care of survivors of childhood cancer. Combining risk-based and patient-oriented solutions for this population is likely to benefit both providers and patients.read more
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Childhood cancer: Survival, treatment modalities, late effects and improvements over time.
Friederike Erdmann,Line Elmerdahl Frederiksen,Audrey Bonaventure,Luzius Mader,Henrik Hasle,Leslie L. Robison,Jeanette Falck Winther +6 more
TL;DR: A comprehensive overview of improvements in survival and treatment modalities over time, as well as the related somatic and mental late effects, and social and socioeconomic difficulties that these children might encounter later in life are provided.
Journal ArticleDOI
Bone health in childhood cancer: review of the literature and recommendations for the management of bone health in childhood cancer survivors.
Gemma Marcucci,G Beltrami,A Tamburini,Jean-Jacques Body,C B Confavreux,Peyman Hadji,G Holzer,David L. Kendler,Nicola Napoli,Nicola Napoli,D. D. Pierroz,René Rizzoli,M. L. Brandi +12 more
TL;DR: A working group to review the bone complications of pediatric cancer survivors was convened, outlining recommendations for the management of bone health, in order to prevent and treat these complications.
Journal ArticleDOI
Adolescent and Young Adult (AYA) Cancer Survivorship Practices: An Overview.
Silvie H. M. Janssen,Winette T. A. van der Graaf,Winette T. A. van der Graaf,Daniël J. van der Meer,Eveliene Manten-Horst,Olga Husson +5 more
TL;DR: The authors in this paper described the population of adolescents and young adults (AYAs) cancer survivors according to their epidemiology and late and long-term effects, the challenges and models of AYA survivorship care, as well as future opportunities for research and healthcare.
Journal ArticleDOI
Follow-Up Care for Breast and Colorectal Cancer Across the Globe: Survey Findings From 27 Countries
Michelle A. Mollica,Deborah K. Mayer,Kevin C. Oeffinger,Youngmee Kim,Susan S. Buckenmaier,Sudha Sivaram,Catherine Muha,Nur Aishah Taib,Elisabeth Andritsch,Chioma C. Asuzu,Ovidiu V Bochis,Sheila Diaz,Maria Die Trill,Patricia J. Garcia,Luigi Grassi,Yosuke Uchitomi,Asim Jamal Shaikh,Michael Jefford,Hyun Jeong Lee,Christoffer Johansen,Emmanuel Luyirika,Elizabeth Jane Maher,Maria Madeline B Mallillin,Theoneste Maniragaba,Anja Mehnert-Theuerkauf,C S Pramesh,Sabine Siesling,Orit Spira,Jonathan Sussman,Lili Tang,Nguyen V Hai,Suayib Yalcin,Paul B. Jacobsen +32 more
TL;DR: Describing follow-up care for breast and colorectal cancer survivors in countries with varying levels of resources and challenges regarding posttreatment survivorship care can guide researchers, providers, and policy makers in efforts to improve the quality of Survivorship care on a national and global basis.
Journal ArticleDOI
Effectiveness and implementation of models of cancer survivorship care: an overview of systematic reviews
Raymond Javan Chan,Raymond Javan Chan,Raymond Javan Chan,Fiona Crawford-Williams,Fiona Crawford-Williams,Megan Crichton,Megan Crichton,Ria Joseph,Nicolas H. Hart,Kristi M Milley,Paige Druce,Jianrong Zhang,Michael Jefford,Karolina Lisy,Jon Emery,Larissa Nekhlyudov,Larissa Nekhlyudov +16 more
TL;DR: In this article, the authors compared nurse-and primary care provider-led and specialist-led models of cancer survivorship care assessed in published systematic reviews and synthesized barriers and facilitators to implementation.
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TL;DR: With the implementation of the evidence‐based methods, this work provides a framework for the harmonization of guidelines for the long‐term follow‐up of childhood and young adult cancer survivors.
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