Outcomes from the Body & Soul Clinical Trials Project: A university-church partnership to improve African American enrollment in a clinical trial registry
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TLDR
A culturally tailored education program about CTs can increase enrollment of African Americans in a university-based clinical trials registry and improve minority CT enrollment over time.About:
This article is published in Patient Education and Counseling.The article was published on 2015-02-01 and is currently open access. It has received 19 citations till now.read more
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Community-Based Participatory Research (CBPR) to Enhance Participation of Racial/Ethnic Minorities in Clinical Trials: A 10-Year Systematic Review.
TL;DR: In this article, the authors provide an update since a systematic review in 2012, on the current status of the empirical research, with a particular focus on the elements of CBPR methods used to improve the rate of accrual of members of racial and ethnic minority communities for clinical trials.
Journal ArticleDOI
Exploring Willingness to Participate in Clinical Trials by Ethnicity
TL;DR: Results indicate that African-American and Hispanic-American participants have more negative attitudes about clinical trials, more distrust toward doctors, more interest in complementary and alternative medicine, and less willingness to participate in clinical trials than white/non-Hispanics, although specific factors affecting willingness to participation vary.
Journal ArticleDOI
Factors associated with biomedical research participation within community-based samples across 3 National Cancer Institute-designated cancer centers.
Nadine J. Barrett,Elisa M. Rodriguez,Ronaldo Iachan,Terry Hyslop,Kearston L. Ingraham,Gem M. Le,Kelly Martin,Rodney C. Haring,Natalie A. Rivadeneira,Deborah O. Erwin,Laura J. Fish,Deirdre Middleton,Robert A. Hiatt,Steven R. Patierno,Urmimala Sarkar,Elizabeth A. Gage-Bouchard +15 more
TL;DR: This study examined factors associated with an invitation to participate in biomedical research, intent to participateIn biomedical research in the future, and participation in biomedicalResearch and biospecimen donation among a diverse, multilingual, community‐based sample across 3 distinct geographic areas.
Journal ArticleDOI
Culturally tailored interventions for ethnic minorities: A scoping review.
Jee Young Joo,Megan F. Liu +1 more
TL;DR: The strengths and weakness of culturally tailored interventions for ethnic minorities’ care in the United States are identified and recently published studies are reviewed to improve understanding of these interventions for future research and practice.
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Trust in national health information sources in the United States: comparing predictors and levels of trust across three health domains.
TL;DR: Data from two cycles of the National Cancer Institute's Health Information National Trends Survey collected in 2015 and 2017 were merged and analyzed and found that those higher in information seeking confidence were more likely to report high trust across all models.
References
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Minorities Remain Underrepresented in HIV/AIDS Research Despite Access to Clinical Trials
Jose R Castillo-Mancilla,Susan E. Cohn,Supriya Krishnan,Michelle S. Cespedes,Michelle Floris-Moore,Gail Schulte,Gregory Pavlov,Donna Mildvan,Kimberly Y. Smith +8 more
TL;DR: Minorities continue to face barriers for HIV/AIDS trial participation, even when clinical research is available, and enrollment strategies should better target minorities to improve recruitment in HIV/ AIDS research.
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A perspective on African American participation in clinical trials.
Fadia T. Shaya,Confidence M. Gbarayor,Huiwen Keri Yang,Marriette Agyeman-Duah,Elijah Saunders +4 more
TL;DR: The various reasons why African American patient recruitment and participation is sub-optimal are discussed; the critical role of clinical trials in therapies; recommendations by important authorities; and a new practice model (Collaborative Care Model) as an innovative strategy to augment participation rates of African Americans in clinical trials are discussed.
Discussion A perspective on African American participation in clinical trials
TL;DR: The relatively low participation of African Americans in phase III clinical trials has raised concerns about the appropriateness of generalizing study results to African American populations as discussed by the authors, which may continue to see disparities in the treatment of diseases as well as unanswered questions as to why the population fares less than others when diagnosed with certain diseases.
Journal Article
Willingness to Participate in Clinical Trials Among African Americans and Whites Previously Exposed To Clinical Research
TL;DR: It is suggested that African Americans are no less willing to participate in clinical trials compared to whites, and race was not significantly related to willingness to participation in the multivariate models for any of the 3 trials.
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Increasing donor designation through black churches: results of a randomized trial.
TL;DR: Use of lay health advisors through black churches can increase minority enrollment in a donor registry even absent change in attitudes, as measured by verified registration in the state's donor registry.