Journal ArticleDOI
Preliminary criteria for the very early diagnosis of systemic sclerosis: results of a Delphi Consensus Study from EULAR Scleroderma Trials and Research Group
Jérôme Avouac,Jaap Fransen,Ulrich A. Walker,Valeria Riccieri,Vanessa Smith,Carolina de Souza Müller,I. Miniati,Ingo H. Tarner,S. Bellando Randone,Maurizio Cutolo,Yannick Allanore,Oliver Distler,Gabriele Valentini,L. Czirják,Ulf Müller-Ladner,Daniel E. Furst,A Tyndall,Marco Matucci-Cerinic,F De Keyser,Alberto Sulli,Carmen Pizzorni,Britta Maurer,Stanislaw Sierakowsky,Otylia Kowal-Bielecka,P. Coelho,G. Riemekasten,Simona Rednic,Ileana Nicoara,Roberto Caporali,Jiri Stork,Murat Inanc,Patricia Carreira,Srdan Novak,Cecília Varjú,Carlo Chizzolini,Camillo Ribi,Eugeniusz J. Kucharz,AT Kotulska,Małgorzata Widuchowska,Jutta G Richter,A. Sipek-Dolnicar,Blaž Rozman,Armando Gabrielli,Gianluca Moroncini,Dominique Farge,C. Durant,Hans P. Kiener,E. Rath,Paolo Airò,Frank A. Wollheim,Nicolas Hunzelmann,Stefano Bombardieri,A. Della Rossa,Laura Bazzichi,Raffaele Pellerito,M. Saracco,Christopher P. Denton,Madelon C. Vonk,F.H.J. van den Hoogen,Nemanja Damjanov,Ina Kötter,Stefan Heitmann,Matthias Seidel,Paul Hasler,J.M. van Laar,Maria João Salvador,J.A. Pereira da Silva,Søren Jacobsen,Margitta Worm,Annegret Kuhn,Tatiana Nevskaya,Evgeny Nasonov,Raffaella Scorza,Henrik Nielsen,Richard M. Silver,Eric Hachulla,D. Launay,Guido Valesini,Ruxandra Ionescu,Daniela Opris,N. Del Papa,Wanda Maglione,D. Comina,G. Udrea,Coziana Ciurtin,R. Ionitescu,C. Mihai,Cord Sunderkötter,Jae Bum Jun,Chris T. Derk,S. Alhasani,L. Alhajjar,Evelien Ton,James R. Seibold,Peter Nash,Luc Mouthon,C. A. Von Mühlen,Brigitte Krummel-Lorenz,P. Eilbacher,Rene Westhovens,E. De Langhe,Miroslav Mayer,Branimir Anić,M. Baresic,F. Stoeckl,Maria Uprus,S. Popa,M. Buslau,B. Granel,Thierry Zenone,Alessandro Mathieu,Alessandra Vacca,Paolo Amerio,T. Tourinho,L. Lonzetti,M. Lemos Lopes,R. E. de Souza,D. Vealex,Paola Caramaschi,Alexandra Balbir-Gurman,Y. Braun,Susanne Ullman,Magdalena Szmyrka-Kaczmarek,Ewa Morgiel,Marie Vanthuyne,M. Meurer,P. Rehberger,Percival D. Sampaio-Barros +127 more
TLDR
A core set of preliminary items considered as important for the very early diagnosis of systemic sclerosis were identified in a Delphi exercise among 110 experts in the field of SSc.Abstract:
Objective: To identify a core set of preliminary items considered as important for the very early diagnosis of systemic sclerosis (SSc). Methods: A list of items provided by European League Against Rheumatism (EULAR) Scleroderma Trial and Research(EUSTAR) centres were subjected to a Delphi exercise among 110 experts in the field of SSc. In round 1, experts were asked to choose the items they considered as the most important for the very early diagnosis of SSc. In round 2, experts were asked to reconsider the items accepted after the first stage. In round 3, the clinical relevance of selected items and their importance as measures that would lead to an early referral process were rated using appropriateness scores. Results: Physicians from 85 EUSTAR centres participated in the study and provided an initial list of 121 items. After three Delphi rounds, the steering committee, with input from external experts, collapsed the 121 items into three domains containing seven items, developed as follows: skin domain (puffy fingers/puffy swollen digits turning into sclerodactily);vascular domain (Raynaud's phenomenon, abnormal capillaroscopy with scleroderma pattern) and laboratory domain (antinuclear, anticentromere and antitopoisomerase-I antibodies). Finally, the whole assembly of EUSTAR centres ratified with a majority vote the results in a final face-to-face meeting. Conclusion: The three Delphi rounds allowed us to identify the items considered by experts as necessary for the very early diagnosis of SSc. The validation of these items to establish diagnostic criteria is currently ongoing in a prospective observational cohort.read more
Citations
More filters
Journal ArticleDOI
2013 classification criteria for systemic sclerosis: An american college of rheumatology/European league against rheumatism collaborative initiative
Frank H J van den Hoogen,Dinesh Khanna,Jaap Fransen,Sindhu R Johnson,Murray Baron,Alan Tyndall,Marco Matucci-Cerinic,Raymond P. Naden,Thomas A. Medsger,Patricia Carreira,Gabriela Riemekasten,Philip J. Clements,Christopher P. Denton,Oliver Distler,Yannick Allanore,Daniel E. Furst,Armando Gabrielli,Maureen D. Mayes,Jacob M van Laar,James R. Seibold,László Czirják,Virginia D. Steen,Murat Inanc,Otylia Kowal-Bielecka,Ulf Müller-Ladner,Gabriele Valentini,Douglas J. Veale,Madelon C. Vonk,Ulrich A Walker,Lorinda Chung,David H. Collier,David H. Collier,Mary Ellen Csuka,Barri J. Fessler,Serena Guiducci,Ariane L. Herrick,Vivien Hsu,Sergio A. Jimenez,Bashar Kahaleh,Bashar Kahaleh,Peter A. Merkel,Stanislav Sierakowski,Richard M. Silver,Robert W. Simms,Robert W. Simms,John Varga,Janet E. Pope +46 more
TL;DR: The ACR/EULAR classification criteria for SSc performed better than the 1980 ACR criteria and should allow for more patients to be classified correctly as having the disease.
Journal ArticleDOI
2013 classification criteria for systemic sclerosis: an American college of rheumatology/European league against rheumatism collaborative initiative
Frank H J van den Hoogen,Dinesh Khanna,Jaap Fransen,Sindhu R Johnson,Murray Baron,Alan Tyndall,Marco Matucci-Cerinic,Raymond P. Naden,Thomas A. Medsger,Patricia Carreira,Gabriela Riemekasten,Philip J. Clements,Christopher P. Denton,Oliver Distler,Yannick Allanore,Daniel E. Furst,Armando Gabrielli,Maureen D. Mayes,Jacob M van Laar,James R. Seibold,László Czirják,Virginia D. Steen,Murat Inanc,Otylia Kowal-Bielecka,Ulf Müller-Ladner,Gabriele Valentini,Douglas J. Veale,Madelon C. Vonk,Ulrich A Walker,Lorinda Chung,David H. Collier,David H. Collier,Mary Ellen Csuka,Barri J. Fessler,Serena Guiducci,Ariane L. Herrick,Ariane L. Herrick,Vivien Hsu,Sergio A. Jimenez,Bashar Kahaleh,Peter A. Merkel,Peter A. Merkel,Stanislav Sierakowski,Richard M. Silver,Robert W. Simms,John Varga,Janet E. Pope +46 more
TL;DR: The ACR/EULAR classification criteria for SSc performed better than the 1980 ACR criteria and should allow for more patients to be classified correctly as having the disease.
Journal ArticleDOI
Review: evidence that systemic sclerosis is a vascular disease.
Journal ArticleDOI
The pathogenesis, diagnosis and treatment of Raynaud phenomenon
TL;DR: An update of the pathogenesis, diagnosis and treatment of Raynaud phenomenon is provided, and current and future treatment approaches are discussed, and some key unanswered questions are highlighted.
Journal ArticleDOI
Standardisation of nailfold capillaroscopy for the assessment of patients with Raynaud's phenomenon and systemic sclerosis
Vanessa Smith,Vanessa Smith,Ariane L. Herrick,Francesca Ingegnoli,Nemanja Damjanov,Rossella De Angelis,Christopher P. Denton,Christopher P. Denton,Oliver Distler,Karinna Espejo,Ivan Foeldvari,Tracy M. Frech,Boris Garro,Marwin Gutierrez,Geneviève Gyger,Geneviève Gyger,Eric Hachulla,Roger Hesselstrand,Annamaria Iagnocco,Cristiane Kayser,Karin Melsens,Karin Melsens,Ulf Müller-Ladner,Sabrina Paolino,Carmen Pizzorni,Mislav Radić,Valeria Riccieri,Marcus H Snow,Wendy Stevens,Alberto Sulli,Jacob M van Laar,Madelon C. Vonk,Amber Vanhaecke,Amber Vanhaecke,Maurizio Cutolo +34 more
TL;DR: Experts in the field of capillaroscopy/microcirculation provide in this very consensus paper their view on image acquisition and analysis, different capillsaroscopic techniques, normal and abnormal capillARoscopic characteristics and their meaning, scoring systems and reliability of image acquisitionand interpretation.
References
More filters
Journal ArticleDOI
Preliminary criteria for the classification of systemic sclerosis (scleroderma)
TL;DR: A multicenter, ongoing study of early-diagnosed cases of systemic sclerosis and comparison patients with systemic lupus erythematosus, polymyositis/dermatomyositis, and Raynaud's phenomenon was conducted in order to develop classification criteria for systemic sclerosis.
Journal Article
Scleroderma (systemic sclerosis): classification, subsets and pathogenesis.
LeRoy Ec,Carol M. Black,Fleischmajer R,Jablonska S,Thomas Krieg,Thomas A. Medsger,N R Rowell,Frank A. Wollheim +7 more
Journal ArticleDOI
Consensus methods for medical and health services research.
Jeremy Jones,Duncan Hunter +1 more
TL;DR: Two consensus methods commonly adopted in medical, nursing, and health services research--the Delphi process and the nominal group technique (also known as the expert panel)--are described, together with the most appropriate situations for using them.
Journal Article
Criteria for the classification of early systemic sclerosis.
LeRoy Ec,Thomas A. Medsger +1 more
TL;DR: Criteria for the early diagnosis and classification of systemic sclerosis that reflect the vascular and serological advances of the last 2 decades are proposed.
Journal ArticleDOI
ASAS/EULAR recommendations for the management of ankylosing spondylitis
Jane Zochling,D. van der Heijde,Ruben Burgos-Vargas,Eduardo Collantes,John C. Davis,Ben A. C. Dijkmans,Maxime Dougados,Pál Géher,Robert D. Inman,Muhammad Asim Khan,Tore K Kvien,Marjatta Leirisalo-Repo,I. Olivieri,Karel Pavelka,Joachim Sieper,Gerold Stucki,Roger D. Sturrock,S van der Linden,D. Wendling,Böhm H,B.J. van Royen,Jürgen Braun +21 more
TL;DR: Ten key recommendations for the treatment of ankylosing spondylitis were developed and assessed using a combination of research based evidence and expert consensus.
Related Papers (5)
2013 classification criteria for systemic sclerosis: An american college of rheumatology/European league against rheumatism collaborative initiative
Frank H J van den Hoogen,Dinesh Khanna,Jaap Fransen,Sindhu R Johnson,Murray Baron,Alan Tyndall,Marco Matucci-Cerinic,Raymond P. Naden,Thomas A. Medsger,Patricia Carreira,Gabriela Riemekasten,Philip J. Clements,Christopher P. Denton,Oliver Distler,Yannick Allanore,Daniel E. Furst,Armando Gabrielli,Maureen D. Mayes,Jacob M van Laar,James R. Seibold,László Czirják,Virginia D. Steen,Murat Inanc,Otylia Kowal-Bielecka,Ulf Müller-Ladner,Gabriele Valentini,Douglas J. Veale,Madelon C. Vonk,Ulrich A Walker,Lorinda Chung,David H. Collier,David H. Collier,Mary Ellen Csuka,Barri J. Fessler,Serena Guiducci,Ariane L. Herrick,Vivien Hsu,Sergio A. Jimenez,Bashar Kahaleh,Bashar Kahaleh,Peter A. Merkel,Stanislav Sierakowski,Richard M. Silver,Robert W. Simms,Robert W. Simms,John Varga,Janet E. Pope +46 more