Talia Gutman

TL;DR: This report outlines implementation strategies and pathways to be established through partnership with stakeholders, which may bolster acceptance and reporting of core outcomes in trials, and encourage their use by end-users such as guideline producers and policymakers to help improve patient-important outcomes.

TL;DR: An international SONG-PD stakeholder consensus workshop was convened in May 2018 in Vancouver, Canada, and all stakeholders supported inclusion of PD-related infection, cardiovascular disease, mortality, technique survival, and life participation as the core outcome domains for PD.

TL;DR: Patients with glomerular disease and their caregivers highly prioritize kidney health and survival, but they also prioritize life participation, fatigue, anxiety, and family impact.

TL;DR: This report summarizes the discussions on the identification and implementation of the SONG-Kids core outcomes set, and four themes were identified; survival and life participation are common high priority goals, capturing the whole child and family, ensuring broad relevance across the patient journey, and requiring feasible and valid measures.

TL;DR: Patients and caregivers gave highest priority to kidney function, mortality, fatigue, life participation, anxiety and depression in chronic kidney disease; consistent reporting of these outcomes in research may inform shared decision-making based on patient and caregiver priorities in CKD.