Journal ArticleDOI
Validation of the inflammatory bowel disease disability index in a population-based cohort
Corinne Gower-Rousseau,Hélène Sarter,Guillaume Savoye,Noémie Tavernier,Mathurin Fumery,William J. Sandborn,Brian G. Feagan,Alain Duhamel,Nathalie Guillon-Dellac,Jean-Frederic Colombel,Laurent Peyrin-Biroulet +10 more
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TLDR
The Inflammatory Bowel Disease Disability Index (IBD-DI) has been validated for use in clinical trials and epidemiological studies and showed high internal consistency, interobserver reliability and construct validity, and a moderate intraob server reliability.Abstract:
IBDs are chronic destructive disorders that negatively affect the functional status of patients. Recently, the Inflammatory Bowel Disease Disability Index (IBD-DI) was developed according to standard WHO processes. The aims of the current study were to validate the IBD-DI in an independent patient cohort, to develop an index-specific scoring system and to describe the disability status of a well-defined population-based cohort of French patients with IBD. From February 2012 to March 2014, the IBD-DI questionnaire was administered to a random sample of adult patients with an established diagnosis of IBD issued from a French population-based registry. The IBD-DI consists of 28 items that evaluate the four domains of body functions, activity participation, body structures and environmental factors. Validation included item reduction and data structure, construct validity, internal consistency, interobserver and intraobserver reliability evaluations. 150 patients with Crohn's disease (CD) and 50 patients with UC completed the IBD-DI validation phase. The intraclass correlation coefficient for interobserver reliability was 0.91 and 0.54 for intraobserver reliability. Cronbach's α of internal consistency was 0.86. IBD-DI scores varied from 0 to 100 with a mean of 35.3 (Q1=19.6; Q3=51.8). IBD-DI scores were highly correlated with Inflammatory Bowel Disease Questionnaire (-0.82; p<0.001) and SF-36 (-0.61; p<0.05) scores. Female gender (p<0.001), clinical disease activity (p<0.0001) and disease duration (p=0.02) were associated with higher IBD-DI scores. The IBD-DI has been validated for use in clinical trials and epidemiological studies. The IBD-DI showed high internal consistency, interobserver reliability and construct validity, and a moderate intraobserver reliability. It comprises 14 questions and ranges from 0 to 100. The mean IBD-DI score was 35.3 and was associated with gender, clinical disease activity and disease duration. Further research is needed to confirm the structural validity and to assess the responsiveness of IBD-DI. 2011-A00877-34.read more
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Ecco-esgar guideline for diagnostic assessment in ibd part 2: Ibd scores and general principles and technical aspects
Andreas Sturm,Christian Maaser,Emma Calabrese,Vito Annese,Gionata Fiorino,Torsten Kucharzik,Stephan R. Vavricka,Bram Verstockt,Patrick F. van Rheenen,Damian Tolan,Stuart A. Taylor,Jordi Rimola,Florian Rieder,Jimmy K. Limdi,Andrea Laghi,Eduards Krustins,Paulo Gustavo Kotze,Uri Kopylov,Konstantinos Katsanos,Steve Halligan,Hannah Gordon,Yago González Lama,Pierre Ellul,Rami Eliakim,Fabiana Castiglione,Johan Burisch,Paula Borralho Nunes,Dominik Bettenworth,Daniel C. Baumgart,Jaap Stoker +29 more
Journal ArticleDOI
Management Strategies to Improve Outcomes of Patients With Inflammatory Bowel Diseases.
TL;DR: The evidence supporting these emerging paradigms, the reasons that early effective treatment can alter progression of inflammatory bowel diseases, the importance of examining objective signs of inflammation, and the safety of reducing treatment dosage are reviewed.
Journal ArticleDOI
A Treat-to-Target Update in Ulcerative Colitis: A Systematic Review
TL;DR: It appears that the relative weight given to different therapeutic targets in the development and improvement of UC treatments could be optimized, with an increased emphasis on endoscopic and histological targets over clinical or symptomatic targets.
Epidémiologie des maladies inflammatoires chroniques de l'Intestin en France : apport du registre EPIMAD : Epidemiology of inflammatory bowel diseases : new insights from a French population-based registry (EPIMAD)
TL;DR: The aim of this study was to review some of the most recent information obtained from this large population-based registry since its launch in 1988.
Journal ArticleDOI
Patient-reported Outcomes in a French Nationwide Survey of Inflammatory Bowel Disease Patients
Nicolas Williet,Hélène Sarter,Corinne Gower-Rousseau,Charlotte Adrianjafy,Alain Olympie,A Buisson,Laurent Beaugerie,Laurent Peyrin-Biroulet +7 more
TL;DR: The disease burden is very high in IBD, with poor QoL, fatigue, work impairment, and depression in half of patients, and marked disability and anxiety were reported by one-third of patients.
References
More filters
Journal ArticleDOI
Guidelines for the process of cross-cultural adaptation of self-report measures.
TL;DR: The guidelines described in this document are based on a review of cross-cultural adaptation in the medical, sociological, and psychological literature and led to the description of a thorough adaptation process designed to maximize the attainment of semantic, idiomatic, experiential, and conceptual equivalence between the source and target questionnaires.
Journal ArticleDOI
A rationale and test for the number of factors in factor analysis.
TL;DR: It is suggested that if Guttman's latent-root-one lower bound estimate for the rank of a correlation matrix is accepted as a psychometric upper bound, then the rank for a sample matrix should be estimated by subtracting out the component in the latent roots which can be attributed to sampling error.
Development and Validation of A
TL;DR: The results suggest that the LJQ is a reliable and valid instrument for evaluating LJ.
Journal ArticleDOI
The COSMIN study reached international consensus on taxonomy, terminology, and definitions of measurement properties for health-related patient-reported outcomes.
Lidwine B. Mokkink,Caroline B. Terwee,Donald L. Patrick,Jordi Alonso,Paul W. Stratford,Dirk L. Knol,Lex M. Bouter,Lex M. Bouter,Henrica C.W. de Vet +8 more
TL;DR: The aim was to clarify and standardize terminology and definitions of measurement properties by reaching consensus among a group of experts and to develop a taxonomy of measurement property relevant for evaluating health instruments.
Journal ArticleDOI
The Montreal classification of inflammatory bowel disease: controversies, consensus, and implications
TL;DR: Key issues that have emerged from discussions of the Montreal Working Party are highlighted and the relevance to clinical practice and research activities are highlighted.
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