Journal ArticleDOI
Health care transition: youth, family, and provider perspectives.
TLDR
Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process and supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures.Abstract:
Objective. This study examined the process of health care transition (HCT) posing the following questions: What are the transition experiences of youths and young adults with disabilities and special health care needs, family members, and health care providers? What are promising practices that facilitate successful HCT? What are obstacles that inhibit HCT? Methods. A qualitative approach was used to investigate these questions. Focus group interviews were conducted. Content and narrative analyses of interview transcripts were completed using ATLAS.ti. Results. Thirty-four focus groups and interviews were conducted with 143 young adults with disabilities and special health care needs, family members, and health care providers. Content analysis yielded 3 content domains: transition services, which presents a chronological understanding of the transition process; health care systems, which presents differences between pediatric and adult-oriented medicine and how these differences inhibit transition; and transition narratives, which discusses transition experience in the broader context of relationships between patients and health care providers. Conclusion. This study demonstrated the presence of important reciprocal relationships that are based on mutual trust between providers and families and are developed as part of the care of chronically ill children. Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process. Evidence further supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures. Young adults’ and family members’ lack of preparation for successful participation in the adult health care system contributes to problems with HCT.read more
Citations
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Journal ArticleDOI
Transition From Pediatric to Adult Care for Young Adults With Chronic Respiratory Disease.
TL;DR: A narrative review summarizes the literature for health care transition from pediatric to adult care including the rationale, barriers, factors associated with successful transition, and special considerations to increase clinician awareness of health care transitions.
Paediatric nephrology patients moving to adult age: a difficult transition to manage. The experience of a paediatric-to-adult out-patient clinic
Sofia Jorge,Fernando Neves,Erica Mendonça,Rosário Stone,Margarida Almeida,Mateus Martins Prata +5 more
TL;DR: Sixty-nine patients referred for transition since 1998 and five of these have never attended a transition visit, studying adhesion to transition, renal function and need for renal replacement therapy.
Among Children and Youth Dynamics of Obesity and Chronic Health Conditions
TL;DR: This work has shown clear trends in adolescent medicine in terms of obesity, and these trends are likely to continue to improve over the course of the adolescent years.
Dissertation
A Multi-Dimensional Outcomes Study in an Inception Cohort of Patients with Interrupted Aortic Arch
TL;DR: The outcomes of patients within a multi-institutional prospective inception cohort of patients with interrupted aortic arch in relation to the durability of surgical intervention, functional health status, and transition to adult care from pediatric care are explored.
Journal ArticleDOI
Health care transition.
TL;DR: It is disappointed to note that there was no identifiable inclusion of combined internal medicine-pediatrics (med-peds) trained physicians in the study.
References
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Journal ArticleDOI
Handbook of Qualitative Research
TL;DR: The discipline and practice of qualitative research have been extensively studied in the literature as discussed by the authors, including the work of Denzin and Denzin, and their history in sociology and anthropology, as well as the role of women in qualitative research.
Book
The theory and practice of group psychotherapy
TL;DR: Yalom as mentioned in this paper described the course of therapy from both the patient's and the therapist's viewpoint in Encounter Groups: First Facts (1973) and Every Day gets a Little Closer: A Twice-Told Therapy (1974).
Data Management and Analysis Methods
Gery W. Ryan,H. Russell Bernard +1 more
TL;DR: In fact, most of the archaeologically recoverable information about human thought and human behavior is text, the good stuff of social science as mentioned in this paper, which is what we use in this paper.
Book
Qualitative Research in Health Care
TL;DR: The Qualitative Research in Health Care as discussed by the authors provides a clear and accessible introduction to conducting and interpreting qualitative research, incorporating new examples, references and chapters relevant for a comprehensive introduction to the subject.
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