Journal ArticleDOI
Health care transition: youth, family, and provider perspectives.
TLDR
Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process and supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures.Abstract:
Objective. This study examined the process of health care transition (HCT) posing the following questions: What are the transition experiences of youths and young adults with disabilities and special health care needs, family members, and health care providers? What are promising practices that facilitate successful HCT? What are obstacles that inhibit HCT? Methods. A qualitative approach was used to investigate these questions. Focus group interviews were conducted. Content and narrative analyses of interview transcripts were completed using ATLAS.ti. Results. Thirty-four focus groups and interviews were conducted with 143 young adults with disabilities and special health care needs, family members, and health care providers. Content analysis yielded 3 content domains: transition services, which presents a chronological understanding of the transition process; health care systems, which presents differences between pediatric and adult-oriented medicine and how these differences inhibit transition; and transition narratives, which discusses transition experience in the broader context of relationships between patients and health care providers. Conclusion. This study demonstrated the presence of important reciprocal relationships that are based on mutual trust between providers and families and are developed as part of the care of chronically ill children. Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process. Evidence further supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures. Young adults’ and family members’ lack of preparation for successful participation in the adult health care system contributes to problems with HCT.read more
Citations
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Journal ArticleDOI
Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home
Patience H. White,W. Carl Cooley +1 more
TL;DR: This updated clinical report provides more practice-based quality improvement guidance on key elements of transition planning, transfer, and integration into adult care for all youth and young adults.
Journal ArticleDOI
Clinical report - Supporting the health care transition from adolescence to adulthood in the medical home
W. Carl Cooley,Paul J. Sagerman,Michael S. Barr,Mary Ciccarelli,Albert C. Hergenroeder,Thomas S. Klitzner,Marie Y. Mann,Laura Pickler,Bonnie Strickland,Brad Thompson,Stuart T. Weinberg,Patience H. White,Nicholas C. Wilkie,Stephanie Mucha Skipper,Amy Brin,Susan K. Flinn +15 more
TL;DR: This clinical report represents expert opinion and consensus on the practice-based implementation of transition for all youth beginning in early adolescence and provides a structure for training and continuing education to further understanding of the nature of adolescent transition and how best to support it.
Journal ArticleDOI
Williams–Beuren Syndrome
TL;DR: This review covers current understanding of the biology of Williams–Beuren syndrome, a disorder of microdeletion or contiguous gene deletion, and its causes.
Journal ArticleDOI
Dynamics of Obesity and Chronic Health Conditions Among Children and Youth
TL;DR: Prevalence of chronic conditions among children and youth increased from 1988 to 2006, however, presence of these conditions was dynamic over each 6-year cohort, and there were higher rates among male (adjusted odds ratio [AOR], 1.24; 95% CI, 1.07-1.42), Hispanic (AOR, 1
Journal ArticleDOI
Measuring the Transition Readiness of Youth with Special Healthcare Needs: Validation of the TRAQ—Transition Readiness Assessment Questionnaire
Gregory S. Sawicki,Katryne Lukens-Bull,Xiaoping Yin,Nathan Demars,I-Chan Huang,William C. Livingood,John Reiss,Darien Wood +7 more
TL;DR: The initial validation study suggests the TRAQ is a useful tool to assess transition readiness in YSHCN and to guide educational interventions by providers to support transition.
References
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Journal ArticleDOI
Teaching Residents About Patient and Practice Termination in Community-Based Continuity Settings
TL;DR: Although the termination process is potentially emotionally difficult, it can be a personally and educationally valuable experience for residents.
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