Journal ArticleDOI
Health care transition: youth, family, and provider perspectives.
TLDR
Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process and supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures.Abstract:
Objective. This study examined the process of health care transition (HCT) posing the following questions: What are the transition experiences of youths and young adults with disabilities and special health care needs, family members, and health care providers? What are promising practices that facilitate successful HCT? What are obstacles that inhibit HCT? Methods. A qualitative approach was used to investigate these questions. Focus group interviews were conducted. Content and narrative analyses of interview transcripts were completed using ATLAS.ti. Results. Thirty-four focus groups and interviews were conducted with 143 young adults with disabilities and special health care needs, family members, and health care providers. Content analysis yielded 3 content domains: transition services, which presents a chronological understanding of the transition process; health care systems, which presents differences between pediatric and adult-oriented medicine and how these differences inhibit transition; and transition narratives, which discusses transition experience in the broader context of relationships between patients and health care providers. Conclusion. This study demonstrated the presence of important reciprocal relationships that are based on mutual trust between providers and families and are developed as part of the care of chronically ill children. Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process. Evidence further supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures. Young adults’ and family members’ lack of preparation for successful participation in the adult health care system contributes to problems with HCT.read more
Citations
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Journal ArticleDOI
Resilience Factors in Paediatric Inflammatory Bowel Disease: Health Care Provider, Parent and Youth Perspectives
Sara Ahola Kohut,Paula Forgeron,Meghan McMurtry,Meghan McMurtry,Natalie Weiser,Armanda Iuliano,Jennifer Stinson +6 more
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Journal ArticleDOI
Healthcare Services During the Transitions to Adulthood Among Individuals with ASD Aged 15-25 Years Old: Stakeholders' Perspectives.
Parisa Ghanouni,Liam Seaker +1 more
TL;DR: In this paper, the authors investigated stakeholders' experiences regarding healthcare services for youth with ASD during their transition to adulthood and found that accessibility and quality of care, tensions and conflicts, and navigation and integrated care can be used to direct change within the healthcare services towards better practices for ASD and increasing the likelihood of positive health outcomes.
Journal ArticleDOI
Wie Eltern und ihre Kinder die pflegegeleitete Transitionssprechstunde für Adoleszente mit angeborenen Herzfehlern erleben
TL;DR: The authors erreichen bis zu 90 % der Patientinnen/Patienten mit angeborenem Herzfehler (AHF) das Erwachsenenalter.
Dissertation
Transition to Adult Care for Youth with Severe Mental Illness: Does Continuity with Primary Care Matter?
TL;DR: In the context of decreasing specialist mental health visits, ensuring adequate access to primary care during the transition period may improve outcomes in young adulthood.
References
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Journal ArticleDOI
Handbook of Qualitative Research
TL;DR: The discipline and practice of qualitative research have been extensively studied in the literature as discussed by the authors, including the work of Denzin and Denzin, and their history in sociology and anthropology, as well as the role of women in qualitative research.
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Data Management and Analysis Methods
Gery W. Ryan,H. Russell Bernard +1 more
TL;DR: In fact, most of the archaeologically recoverable information about human thought and human behavior is text, the good stuff of social science as mentioned in this paper, which is what we use in this paper.
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TL;DR: The Qualitative Research in Health Care as discussed by the authors provides a clear and accessible introduction to conducting and interpreting qualitative research, incorporating new examples, references and chapters relevant for a comprehensive introduction to the subject.
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