Journal ArticleDOI
Health care transition: youth, family, and provider perspectives.
TLDR
Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process and supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures.Abstract:
Objective. This study examined the process of health care transition (HCT) posing the following questions: What are the transition experiences of youths and young adults with disabilities and special health care needs, family members, and health care providers? What are promising practices that facilitate successful HCT? What are obstacles that inhibit HCT? Methods. A qualitative approach was used to investigate these questions. Focus group interviews were conducted. Content and narrative analyses of interview transcripts were completed using ATLAS.ti. Results. Thirty-four focus groups and interviews were conducted with 143 young adults with disabilities and special health care needs, family members, and health care providers. Content analysis yielded 3 content domains: transition services, which presents a chronological understanding of the transition process; health care systems, which presents differences between pediatric and adult-oriented medicine and how these differences inhibit transition; and transition narratives, which discusses transition experience in the broader context of relationships between patients and health care providers. Conclusion. This study demonstrated the presence of important reciprocal relationships that are based on mutual trust between providers and families and are developed as part of the care of chronically ill children. Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process. Evidence further supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures. Young adults’ and family members’ lack of preparation for successful participation in the adult health care system contributes to problems with HCT.read more
Citations
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Journal ArticleDOI
Determinants of quality of care for adolescents and young adults with chronic illnesses: a mixed methods study
TL;DR: The study revealed 4 main determinants: the provision of adolescent friendly information relating to all aspects of living with chronic conditions, services that facilitate and encourage independence, services characterized by structure with the capacity to be both dynamic and responsive, and health care professionals knowledgeable and skilled in relation to adolescent specific issues.
Journal ArticleDOI
Adult Care Transitioning for Adolescents with Special Health Care Needs: A Pivotal Role for Family Centered Care
Naomi N. Duke,Peter B Scal +1 more
TL;DR: Study findings support the development of health care delivery models focusing on family centered care to the same degree as other health care access issues.
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Transition of pediatric patients to adult care: an analysis of provider perceptions across discipline and role.
TL;DR: It is concluded that pediatric providers share common concerns about transitioning pediatric patients to adult care, and a sense of professional ego was identified as a barrier to successful transition.
Journal ArticleDOI
Scoping review of patient- and family-oriented outcomes and measures for chronic pediatric disease
Sara D. Khangura,Maria D. Karaceper,Yannis Trakadis,John J. Mitchell,Pranesh Chakraborty,Pranesh Chakraborty,Kylie Tingley,Doug Coyle,Scott D. Grosse,Jonathan B. Kronick,Jonathan B. Kronick,Anne-Marie Laberge,Julian Little,Chitra Prasad,Lindsey Sikora,Komudi Siriwardena,Rebecca Sparkes,Kathy N. Speechley,Sylvia Stockler,Brenda Wilson,Kumanan Wilson,Reem Zayed,Beth K. Potter +22 more
TL;DR: Patient- and family-oriented research investigating chronic pediatric diseases emphasizes mental health and appears to be relatively well-developed in the diabetes literature, with mental health outcomes appearing most frequently.
Journal ArticleDOI
Long-Term Care of the Pediatric Kidney Transplant Recipient.
TL;DR: In this paper, the authors describe the characteristics of pediatric kidney transplant recipients, particularly those factors that may influence their care throughout their lives, and discuss the risks associated with the transition from pediatric-to adult-oriented care and provide some suggestions to optimize transition to adultoriented transplant care and longterm outcomes.
References
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Handbook of Qualitative Research
TL;DR: The discipline and practice of qualitative research have been extensively studied in the literature as discussed by the authors, including the work of Denzin and Denzin, and their history in sociology and anthropology, as well as the role of women in qualitative research.
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