Journal ArticleDOI
Health care transition: youth, family, and provider perspectives.
TLDR
Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process and supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures.Abstract:
Objective. This study examined the process of health care transition (HCT) posing the following questions: What are the transition experiences of youths and young adults with disabilities and special health care needs, family members, and health care providers? What are promising practices that facilitate successful HCT? What are obstacles that inhibit HCT? Methods. A qualitative approach was used to investigate these questions. Focus group interviews were conducted. Content and narrative analyses of interview transcripts were completed using ATLAS.ti. Results. Thirty-four focus groups and interviews were conducted with 143 young adults with disabilities and special health care needs, family members, and health care providers. Content analysis yielded 3 content domains: transition services, which presents a chronological understanding of the transition process; health care systems, which presents differences between pediatric and adult-oriented medicine and how these differences inhibit transition; and transition narratives, which discusses transition experience in the broader context of relationships between patients and health care providers. Conclusion. This study demonstrated the presence of important reciprocal relationships that are based on mutual trust between providers and families and are developed as part of the care of chronically ill children. Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process. Evidence further supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures. Young adults’ and family members’ lack of preparation for successful participation in the adult health care system contributes to problems with HCT.read more
Citations
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Journal ArticleDOI
Facilitating the transition of adolescents with developmental disabilities: nursing practice issues and care
TL;DR: Transition assessment, planning, and intervention strategies that can be integrated into a comprehensive plan of care are discussed and important issues that adolescents with developmental disabilities face as they approach adulthood are provided.
Journal ArticleDOI
Say goodbye and say hello: the transition from pediatric to adult gastroenterology.
TL;DR: Important aspects of the transition from the pediatric to the adult care health system are reviewed.
Journal ArticleDOI
Parental Experiences Transitioning Their Adolescent With Epilepsy and Cognitive Impairments to Adult Health Care
TL;DR: This study affirms the need to develop a transition program that acknowledges the unique challenges of transitioning adolescents with cognitive impairments and the interrelationship between these parents and other systems.
Journal ArticleDOI
Assessing the health, functional characteristics, and health needs of youth attending a noncategorical transition support program
TL;DR: Youth attending a comprehensive, noncategorical transition program had more functional limitations, poorer reported health status, different diagnosis distribution, and higher levels of needed health services.
Journal ArticleDOI
Discontinuity in the transition from pediatric to adult health care for patients with attention-deficit/hyperactivity disorder.
C Brendan Montano,Joel Young +1 more
TL;DR: The current literature reveals a number of barriers to the continuity of care, including disparities and inadequacies in ADHD education in primary care and internal medicine residencies, prohibitive prescribing practices with respect to stimulants, inadequate clinic staffing, lack of support in the college health care system, and inadequate health insurance coverage.
References
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Journal ArticleDOI
Handbook of Qualitative Research
TL;DR: The discipline and practice of qualitative research have been extensively studied in the literature as discussed by the authors, including the work of Denzin and Denzin, and their history in sociology and anthropology, as well as the role of women in qualitative research.
Book
The theory and practice of group psychotherapy
TL;DR: Yalom as mentioned in this paper described the course of therapy from both the patient's and the therapist's viewpoint in Encounter Groups: First Facts (1973) and Every Day gets a Little Closer: A Twice-Told Therapy (1974).
Data Management and Analysis Methods
Gery W. Ryan,H. Russell Bernard +1 more
TL;DR: In fact, most of the archaeologically recoverable information about human thought and human behavior is text, the good stuff of social science as mentioned in this paper, which is what we use in this paper.
Book
Qualitative Research in Health Care
TL;DR: The Qualitative Research in Health Care as discussed by the authors provides a clear and accessible introduction to conducting and interpreting qualitative research, incorporating new examples, references and chapters relevant for a comprehensive introduction to the subject.
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