Journal ArticleDOI
Health care transition: youth, family, and provider perspectives.
TLDR
Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process and supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures.Abstract:
Objective. This study examined the process of health care transition (HCT) posing the following questions: What are the transition experiences of youths and young adults with disabilities and special health care needs, family members, and health care providers? What are promising practices that facilitate successful HCT? What are obstacles that inhibit HCT? Methods. A qualitative approach was used to investigate these questions. Focus group interviews were conducted. Content and narrative analyses of interview transcripts were completed using ATLAS.ti. Results. Thirty-four focus groups and interviews were conducted with 143 young adults with disabilities and special health care needs, family members, and health care providers. Content analysis yielded 3 content domains: transition services, which presents a chronological understanding of the transition process; health care systems, which presents differences between pediatric and adult-oriented medicine and how these differences inhibit transition; and transition narratives, which discusses transition experience in the broader context of relationships between patients and health care providers. Conclusion. This study demonstrated the presence of important reciprocal relationships that are based on mutual trust between providers and families and are developed as part of the care of chronically ill children. Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process. Evidence further supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures. Young adults’ and family members’ lack of preparation for successful participation in the adult health care system contributes to problems with HCT.read more
Citations
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Journal ArticleDOI
"Sometimes I feel overwhelmed": educational needs of family physicians caring for people with intellectual disability.
TL;DR: Primary care physicians request some modification of their educational experience to better equip them to care for patients with intellectual disability, and their request for experiential, not theoretical, learning fits well under the umbrella of cultural competence.
Journal ArticleDOI
Transition from pediatric to adult services: are we getting it right?
Andrew Kennedy,Susan M Sawyer +1 more
TL;DR: More systematic investment in regional clinical service planning is indicated, as is investment in more systematic approaches to training both pediatric and adult healthcare providers around the importance of transition to adult healthcare.
Journal ArticleDOI
Transition to adult health care for adolescents and young adults with congenital heart disease: Perspectives of the patient, parent and health care provider
Nadia A. Clarizia,Nita Chahal,Cedric Manlhiot,Jennifer Kilburn,Andrew N. Redington,Brian W. McCrindle +5 more
TL;DR: A lack of clear role expectations indicates a need for the pediatric health care setting to adapt appropriately to address the shifting needs of adolescent and young adult patients and their families.
Journal ArticleDOI
Treatment Adherence in Adolescents and Young Adults Affected by Chronic Illness During the Health Care Transition From Pediatric to Adult Health Care: A Literature Review
TL;DR: Age, psychological functioning, and insurance status are related to non-adherence during the HCT period and the rates of, factors that influence, and the impact of non- adherence on health outcomes during theHCT are examined.
Journal ArticleDOI
JCS/JSCS 2020 Guideline on Diagnosis and Management of Cardiovascular Sequelae in Kawasaki Disease
Ryuji Fukazawa,Junjiro Kobayashi,Mamoru Ayusawa,Hiromichi Hamada,Masaru Miura,Yoshihide Mitani,Etsuko Tsuda,Hiroyuki Nakajima,Hiroyuki Matsuura,Kazuyuki Ikeda,Kazuhiko Nishigaki,Hiroyuki Suzuki,Kei Takahashi,Kenji Suda,Hiroshi Kamiyama,Yoshihiro Onouchi,Tohru Kobayashi,Hiroyoshi Yokoi,Kisaburo Sakamoto,Masami Ochi,Soichiro Kitamura,Kenji Hamaoka,Hideaki Senzaki,Takeshi Kimura +23 more
References
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Handbook of Qualitative Research
TL;DR: The discipline and practice of qualitative research have been extensively studied in the literature as discussed by the authors, including the work of Denzin and Denzin, and their history in sociology and anthropology, as well as the role of women in qualitative research.
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