Journal ArticleDOI
Health care transition: youth, family, and provider perspectives.
TLDR
Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process and supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures.Abstract:
Objective. This study examined the process of health care transition (HCT) posing the following questions: What are the transition experiences of youths and young adults with disabilities and special health care needs, family members, and health care providers? What are promising practices that facilitate successful HCT? What are obstacles that inhibit HCT? Methods. A qualitative approach was used to investigate these questions. Focus group interviews were conducted. Content and narrative analyses of interview transcripts were completed using ATLAS.ti. Results. Thirty-four focus groups and interviews were conducted with 143 young adults with disabilities and special health care needs, family members, and health care providers. Content analysis yielded 3 content domains: transition services, which presents a chronological understanding of the transition process; health care systems, which presents differences between pediatric and adult-oriented medicine and how these differences inhibit transition; and transition narratives, which discusses transition experience in the broader context of relationships between patients and health care providers. Conclusion. This study demonstrated the presence of important reciprocal relationships that are based on mutual trust between providers and families and are developed as part of the care of chronically ill children. Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process. Evidence further supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures. Young adults’ and family members’ lack of preparation for successful participation in the adult health care system contributes to problems with HCT.read more
Citations
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Journal ArticleDOI
Konzeption und Erfassung der gesundheitsbezogenen Transitionskompetenz von Jugendlichen mit chronischen Erkrankungen – Entwicklung und Prüfung eines Selbstbeurteilungsinstrumentes
TL;DR: In this article, an item pool for the evaluation of transition-bezogenen Transitionskompetenzenz (TK) is presented, in which gesundheitsbezogene Versorgungs-and Selbstmanagement-Kompetenzen bei Jugendlichen erforderlich sind.
Journal ArticleDOI
Transition and transfer of patients who have cystic fibrosis to adult care.
TL;DR: In this article, a transition to age-appropriate care and transfer of care is a process that best occurs over time, and a timeline for transition should begin years before transfer with the realization that one plan may not accommodate all patients' needs.
Journal ArticleDOI
Engaging Patients With Sickle Cell Disease and Their Families in Disease Education, Research, and Community Awareness
Janelle Hines,Monica J. Mitchell,Lori E. Crosby,Alisha Johnson,Jessica M. Valenzuela,Karen Kalinyak,Clinton H. Joiner +6 more
TL;DR: Research and Education Day is a model for educating participants with sickle cell and their families, engaging them in research studies, and enhancing community awareness and support.
Journal ArticleDOI
Lost in transition: resident and fellow training and experience caring for young adults with chronic conditions in a large United States' academic medical center.
TL;DR: Despite at least monthly encounters with AYA with chronic conditions, most residents and fellows have very little experience communicating across the pediatric-to-adult healthcare divide, highlighting training opportunities in graduate medical education.
Journal ArticleDOI
Informing choice or teaching submission to medical authority: a case study of adolescent transitioning for sickle cell patients
TL;DR: The experiences of a social worker in a pediatric hospital clinic is used as a lens for understanding the role patient education can play in improved outcomes and demonstrates that perhaps a better approach is for patients to be taught how medical professionals think and how healthcare institutions rationalize treatment options.
References
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Handbook of Qualitative Research
TL;DR: The discipline and practice of qualitative research have been extensively studied in the literature as discussed by the authors, including the work of Denzin and Denzin, and their history in sociology and anthropology, as well as the role of women in qualitative research.
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TL;DR: The Qualitative Research in Health Care as discussed by the authors provides a clear and accessible introduction to conducting and interpreting qualitative research, incorporating new examples, references and chapters relevant for a comprehensive introduction to the subject.
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