Journal ArticleDOI
Health care transition: youth, family, and provider perspectives.
TLDR
Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process and supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures.Abstract:
Objective. This study examined the process of health care transition (HCT) posing the following questions: What are the transition experiences of youths and young adults with disabilities and special health care needs, family members, and health care providers? What are promising practices that facilitate successful HCT? What are obstacles that inhibit HCT? Methods. A qualitative approach was used to investigate these questions. Focus group interviews were conducted. Content and narrative analyses of interview transcripts were completed using ATLAS.ti. Results. Thirty-four focus groups and interviews were conducted with 143 young adults with disabilities and special health care needs, family members, and health care providers. Content analysis yielded 3 content domains: transition services, which presents a chronological understanding of the transition process; health care systems, which presents differences between pediatric and adult-oriented medicine and how these differences inhibit transition; and transition narratives, which discusses transition experience in the broader context of relationships between patients and health care providers. Conclusion. This study demonstrated the presence of important reciprocal relationships that are based on mutual trust between providers and families and are developed as part of the care of chronically ill children. Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process. Evidence further supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures. Young adults’ and family members’ lack of preparation for successful participation in the adult health care system contributes to problems with HCT.read more
Citations
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Journal ArticleDOI
The neurologist's role in supporting transition to adult health care: A consensus statement.
Lawrence W. Brown,Peter Camfield,Melissa Capers,Greg Cascino,Mary Ciccarelli,Claudio M. de Gusmao,Stephen M. Downs,Annette Majnemer,Amy Brin Miller,Christina SanInocencio,Rebecca Schultz,Anne Tilton,Annick Winokur,Mary L. Zupanc +13 more
TL;DR: The authors of this consensus statement recognize the current paucity of evidence for successful transition models and outline areas for future consideration.
Journal ArticleDOI
Health Care Transition in Young Adults With Type 1 Diabetes: Perspectives of Adult Endocrinologists in the U.S.
Katharine C. Garvey,Gabriela H. Telo,Joseph S. Needleman,Peter W. Forbes,Jonathan A. Finkelstein,Lori M.B. Laffel +5 more
TL;DR: The findings underscore the need for enhanced information transfer between pediatric and adult providers and increased mental health referral access for young adults with diabetes post-transition.
Journal ArticleDOI
Physician behavior in the care of pediatric chronic illness: association with health outcomes and treatment adherence.
TL;DR: Future research should be guided by a comprehensive model of physician behavior in chronic illness management that considers contextual determinants, identifies clinically relevant targets for intervention, and documents the impact on health outcomes.
Journal ArticleDOI
How adult specialists deal with the principles of a successful transition.
TL;DR: Whether adult specialists comply with the basic principles for a successful transition of adolescents with chronic disorders is evaluated, and whether the characteristics of the adult specialists have an influence on applying these principles are determined.
Journal ArticleDOI
Transition of patients with inflammatory bowel disease from pediatric to adult care
Alain Dabadie,F. Troadec,Denis Heresbach,Laurent Siproudhis,Mael Pagenault,Jean-François Bretagne +5 more
TL;DR: In this article, a study was designed to ascertain the perception of patients (and their parents) followed-up for inflammatory bowel disease concerning the transition from pediatric to adult care patients and methods.
References
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Handbook of Qualitative Research
TL;DR: The discipline and practice of qualitative research have been extensively studied in the literature as discussed by the authors, including the work of Denzin and Denzin, and their history in sociology and anthropology, as well as the role of women in qualitative research.
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