Journal ArticleDOI
Health care transition: youth, family, and provider perspectives.
TLDR
Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process and supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures.Abstract:
Objective. This study examined the process of health care transition (HCT) posing the following questions: What are the transition experiences of youths and young adults with disabilities and special health care needs, family members, and health care providers? What are promising practices that facilitate successful HCT? What are obstacles that inhibit HCT? Methods. A qualitative approach was used to investigate these questions. Focus group interviews were conducted. Content and narrative analyses of interview transcripts were completed using ATLAS.ti. Results. Thirty-four focus groups and interviews were conducted with 143 young adults with disabilities and special health care needs, family members, and health care providers. Content analysis yielded 3 content domains: transition services, which presents a chronological understanding of the transition process; health care systems, which presents differences between pediatric and adult-oriented medicine and how these differences inhibit transition; and transition narratives, which discusses transition experience in the broader context of relationships between patients and health care providers. Conclusion. This study demonstrated the presence of important reciprocal relationships that are based on mutual trust between providers and families and are developed as part of the care of chronically ill children. Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process. Evidence further supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures. Young adults’ and family members’ lack of preparation for successful participation in the adult health care system contributes to problems with HCT.read more
Citations
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Journal ArticleDOI
Transition to Adult Care for Youths With Diabetes Mellitus: Findings From a Universal Health Care System
TL;DR: During the transition to adult health care, there is increased risk of diabetes mellitus-related hospitalizations, although this may be attenuated in youths for whom there is physician continuity.
Journal ArticleDOI
Transition from pediatric to adult care: internists' perspectives.
Nadja G. Peter,Christine M. Forke,Kenneth R. Ginsburg,Kenneth R. Ginsburg,Donald F. Schwarz,Donald F. Schwarz +5 more
TL;DR: Concerns identified included the need for better training in congenital and childhood-onset conditions, training of more adult subspecialists, and continued family involvement, as well as financial support to care for patients with complex conditions.
Journal ArticleDOI
Transition From Pediatric to Adult Care for Youth Diagnosed With Type 1 Diabetes in Adolescence
Debra Lotstein,Michael Seid,Georgeanna J. Klingensmith,Doug Case,Jean M. Lawrence,Catherine Pihoker,Dana Dabelea,Elizabeth J. Mayer-Davis,Lisa K. Gilliam,Sarah D. Corathers,Giuseppina Imperatore,Lawrence M. Dolan,Andrea Anderson,Ronny A. Bell,Beth E. Waitzfelder +14 more
TL;DR: Transferring from pediatric to adult care, experienced by more than half the sample, was associated with an increased risk of poor glycemic control at follow-up, and these findings suggest that young adults need additional support when moving toadult care.
Journal ArticleDOI
Crossing the transition chasm: experiences and recommendations for improving transitional care of young adults, parents and providers
TL;DR: Action is required to cross the chasm between paediatric and adult-oriented care, and preparation for transition should start early and focus on strengthening adolescents' independency without undermining parental involvement.
Journal ArticleDOI
What Do We Really Know About the Transition to Adult-Centered Health Care? A Focus on Cerebral Palsy and Spina Bifida
TL;DR: This review summarizes key factors that must be considered to support this critical clinical transition and sets the foundation for future research to apply prospective study designs to evaluate transition interventions and determine long-term health outcomes.
References
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Journal ArticleDOI
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