Journal ArticleDOI
Health care transition: youth, family, and provider perspectives.
TLDR
Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process and supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures.Abstract:
Objective. This study examined the process of health care transition (HCT) posing the following questions: What are the transition experiences of youths and young adults with disabilities and special health care needs, family members, and health care providers? What are promising practices that facilitate successful HCT? What are obstacles that inhibit HCT? Methods. A qualitative approach was used to investigate these questions. Focus group interviews were conducted. Content and narrative analyses of interview transcripts were completed using ATLAS.ti. Results. Thirty-four focus groups and interviews were conducted with 143 young adults with disabilities and special health care needs, family members, and health care providers. Content analysis yielded 3 content domains: transition services, which presents a chronological understanding of the transition process; health care systems, which presents differences between pediatric and adult-oriented medicine and how these differences inhibit transition; and transition narratives, which discusses transition experience in the broader context of relationships between patients and health care providers. Conclusion. This study demonstrated the presence of important reciprocal relationships that are based on mutual trust between providers and families and are developed as part of the care of chronically ill children. Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process. Evidence further supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures. Young adults’ and family members’ lack of preparation for successful participation in the adult health care system contributes to problems with HCT.read more
Citations
More filters
Exploring Healthcare Experiences of Lesbian, Gay, and Bisexual College Students Using Community-Based Participatory Research: A Dissertation
TL;DR: In this article, the authors describe the healthcare experiences of LGB college students (ages 18-24) in the local college community using community-based participatory research (CBPR).
Book ChapterDOI
Building a Medical Home for Children and Youth with Special Health Care Needs
Renee M. Turchi,Marie Y. Mann +1 more
TL;DR: A high-quality functioning medical home does not need to provide every service alone, but does require effective partnerships across various settings and the community via coordination across systems, and information sharing can improve coordination of care.
Journal ArticleDOI
Assessment of Health Literacy and Self-reported Readiness for Transition to Adult Care Among Adolescents and Young Adults With Spina Bifida.
James T. Rague,Soojin Kim,Josephine A. Hirsch,Theresa Meyer,Ilina Rosoklija,Jill E. Larson,Vineeta T. Swaroop,Robin M. Bowman,Diana K. Bowen,Earl Y. Cheng,Elisa J. Gordon,Daniel I. Chu,Tamara Isakova,Elizabeth B. Yerkes,David I. Chu,David I. Chu +15 more
TL;DR: In this article, the authors investigated the role of health literacy in the transition from pediatric to adult care in adolescents and young adults with spina bifida, and found that high rates of unsuccessful transition have been shown, but how patient health literacy affects transition readiness remains unknown.
Journal ArticleDOI
African American Emerging Adults’ Perspectives on Taking Asthma Controller Medication Adherence in the “Age of Feeling In-Between”
TL;DR: Clinicians and researchers interested in improving adherence should carefully assess barriers to adherence when working with African Americans with asthma in emerging adulthood to target both intentional and unintentional reasons for non-adherence behavior.
Journal ArticleDOI
Results of a National Text Message Poll of Youth: Perspectives on Primary Care.
Melissa DeJonckheere,Aisling Zhao,Jenni Lane,Melissa A. Plegue,Lauren Ranalli,Ellen Cogen Wagner,Margaret Riley +6 more
TL;DR: A transformation is needed to create more patient-centered care that aligns with young people's values and experiences to positively impact the health of young people today and the adults of the future.
References
More filters
Journal ArticleDOI
Handbook of Qualitative Research
TL;DR: The discipline and practice of qualitative research have been extensively studied in the literature as discussed by the authors, including the work of Denzin and Denzin, and their history in sociology and anthropology, as well as the role of women in qualitative research.
Book
The theory and practice of group psychotherapy
TL;DR: Yalom as mentioned in this paper described the course of therapy from both the patient's and the therapist's viewpoint in Encounter Groups: First Facts (1973) and Every Day gets a Little Closer: A Twice-Told Therapy (1974).
Data Management and Analysis Methods
Gery W. Ryan,H. Russell Bernard +1 more
TL;DR: In fact, most of the archaeologically recoverable information about human thought and human behavior is text, the good stuff of social science as mentioned in this paper, which is what we use in this paper.
Book
Qualitative Research in Health Care
TL;DR: The Qualitative Research in Health Care as discussed by the authors provides a clear and accessible introduction to conducting and interpreting qualitative research, incorporating new examples, references and chapters relevant for a comprehensive introduction to the subject.
Related Papers (5)
A consensus statement on health care transitions for young adults with special health care needs
Robert W. Blum,D. Hirsch,Theodore A. Kastner,R. D. Quint,Adrian D. Sandler,Susan M. Anderson,Maria T. Britto,Jan Brunstrom,Gilbert A. Buchanan,Robert Burke,John K. Chamberlain,Barbara Medoff Cooper,Daniel Davidow,Theora Evans,Thomas Gloss,Patti Hackett,Patrick Harr,William Kiernan,Eric B. Levey,Merle McPherson,Kevin Murphy,Maureen R. Nelson,Donna Gore Olson,Gary M. Onady,Betty Presler,John Reiss,Michael Rich,Peggy Mann Rinehart,David A. Rosen,Peter B Scal,David M. Siegel,Gail B. Slap,Paul Clay Sorum,Maria Veronica Svetaz,Patricia Thomas,Margaret A. Turk,Patience H. White,Philip Ziring +37 more