Journal ArticleDOI
Health care transition: youth, family, and provider perspectives.
TLDR
Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process and supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures.Abstract:
Objective. This study examined the process of health care transition (HCT) posing the following questions: What are the transition experiences of youths and young adults with disabilities and special health care needs, family members, and health care providers? What are promising practices that facilitate successful HCT? What are obstacles that inhibit HCT? Methods. A qualitative approach was used to investigate these questions. Focus group interviews were conducted. Content and narrative analyses of interview transcripts were completed using ATLAS.ti. Results. Thirty-four focus groups and interviews were conducted with 143 young adults with disabilities and special health care needs, family members, and health care providers. Content analysis yielded 3 content domains: transition services, which presents a chronological understanding of the transition process; health care systems, which presents differences between pediatric and adult-oriented medicine and how these differences inhibit transition; and transition narratives, which discusses transition experience in the broader context of relationships between patients and health care providers. Conclusion. This study demonstrated the presence of important reciprocal relationships that are based on mutual trust between providers and families and are developed as part of the care of chronically ill children. Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process. Evidence further supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures. Young adults’ and family members’ lack of preparation for successful participation in the adult health care system contributes to problems with HCT.read more
Citations
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DissertationDOI
The Role of Child Life Specialists in Transitioning Patients With Sickle Cell Disease From Pediatric Care to Adult Management
TL;DR: In this article , the role of child life intervention in a Sickle Cell Transition Clinic is discussed. But the authors focus on the transition of the clinic from a hospital to a children's care center.
Journal ArticleDOI
"All circuits ended": Family experiences of transitioning from pediatric to adult healthcare for young adults with medical complexity in Oregon.
Shreya Roy,Ana M.D. Valdez,Bran Dee Trejo,Tamara Bakewell,Sheryl Gallarde-Kim,Alison J. Martin +5 more
TL;DR: The authors explored the experiences of families of young adults with medical complexity (YAMC) who had recently transitioned to adult health care providers, and obtained recommendations for transition from family members, to inform the development of the CoIIN quality improvement project.
Journal ArticleDOI
Transition aus psychologischer Sicht
TL;DR: Health care transition comprises the planned and coordinated transfer of responsibilities to the young adult person and the new adult medicine health care providers.
Book ChapterDOI
Establishing the Administrative Structure and Support for a Healthcare Transition Program
Mary Ciccarelli,Jason Woodward +1 more
TL;DR: The goal of this chapter is to demonstrate key steps in the establishment of administrative structure and support to successfully develop a healthcare transition program across the variety of possible models.
References
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Journal ArticleDOI
Handbook of Qualitative Research
TL;DR: The discipline and practice of qualitative research have been extensively studied in the literature as discussed by the authors, including the work of Denzin and Denzin, and their history in sociology and anthropology, as well as the role of women in qualitative research.
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Data Management and Analysis Methods
Gery W. Ryan,H. Russell Bernard +1 more
TL;DR: In fact, most of the archaeologically recoverable information about human thought and human behavior is text, the good stuff of social science as mentioned in this paper, which is what we use in this paper.
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Qualitative Research in Health Care
TL;DR: The Qualitative Research in Health Care as discussed by the authors provides a clear and accessible introduction to conducting and interpreting qualitative research, incorporating new examples, references and chapters relevant for a comprehensive introduction to the subject.
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