Journal ArticleDOI
Health care transition: youth, family, and provider perspectives.
TLDR
Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process and supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures.Abstract:
Objective. This study examined the process of health care transition (HCT) posing the following questions: What are the transition experiences of youths and young adults with disabilities and special health care needs, family members, and health care providers? What are promising practices that facilitate successful HCT? What are obstacles that inhibit HCT? Methods. A qualitative approach was used to investigate these questions. Focus group interviews were conducted. Content and narrative analyses of interview transcripts were completed using ATLAS.ti. Results. Thirty-four focus groups and interviews were conducted with 143 young adults with disabilities and special health care needs, family members, and health care providers. Content analysis yielded 3 content domains: transition services, which presents a chronological understanding of the transition process; health care systems, which presents differences between pediatric and adult-oriented medicine and how these differences inhibit transition; and transition narratives, which discusses transition experience in the broader context of relationships between patients and health care providers. Conclusion. This study demonstrated the presence of important reciprocal relationships that are based on mutual trust between providers and families and are developed as part of the care of chronically ill children. Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process. Evidence further supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures. Young adults’ and family members’ lack of preparation for successful participation in the adult health care system contributes to problems with HCT.read more
Citations
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Journal ArticleDOI
Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home
Patience H. White,W. Carl Cooley +1 more
TL;DR: This updated clinical report provides more practice-based quality improvement guidance on key elements of transition planning, transfer, and integration into adult care for all youth and young adults.
Journal ArticleDOI
Clinical report - Supporting the health care transition from adolescence to adulthood in the medical home
W. Carl Cooley,Paul J. Sagerman,Michael S. Barr,Mary Ciccarelli,Albert C. Hergenroeder,Thomas S. Klitzner,Marie Y. Mann,Laura Pickler,Bonnie Strickland,Brad Thompson,Stuart T. Weinberg,Patience H. White,Nicholas C. Wilkie,Stephanie Mucha Skipper,Amy Brin,Susan K. Flinn +15 more
TL;DR: This clinical report represents expert opinion and consensus on the practice-based implementation of transition for all youth beginning in early adolescence and provides a structure for training and continuing education to further understanding of the nature of adolescent transition and how best to support it.
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Williams–Beuren Syndrome
TL;DR: This review covers current understanding of the biology of Williams–Beuren syndrome, a disorder of microdeletion or contiguous gene deletion, and its causes.
Journal ArticleDOI
Dynamics of Obesity and Chronic Health Conditions Among Children and Youth
TL;DR: Prevalence of chronic conditions among children and youth increased from 1988 to 2006, however, presence of these conditions was dynamic over each 6-year cohort, and there were higher rates among male (adjusted odds ratio [AOR], 1.24; 95% CI, 1.07-1.42), Hispanic (AOR, 1
Journal ArticleDOI
Measuring the Transition Readiness of Youth with Special Healthcare Needs: Validation of the TRAQ—Transition Readiness Assessment Questionnaire
Gregory S. Sawicki,Katryne Lukens-Bull,Xiaoping Yin,Nathan Demars,I-Chan Huang,William C. Livingood,John Reiss,Darien Wood +7 more
TL;DR: The initial validation study suggests the TRAQ is a useful tool to assess transition readiness in YSHCN and to guide educational interventions by providers to support transition.
References
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Journal ArticleDOI
Transition from paediatric to adult care for persons with cystic fibrosis: patient and parent perspectives.
TL;DR: To gauge the perspectives of adolescents and adults with cystic fibrosis (CF) and their parents regarding the transition from paediatric to adult‐oriented health care, a survey of parents and children with CF is conducted.
Journal ArticleDOI
Adolescent Health Transitions: Focus Group Study of Teens and Young Adults with Special Health Care Needs
Diana L. Patterson,Cam Lanier +1 more
TL;DR: Adolescents with special health needs may be uncomfortable as adult health care consumers; families and health care providers also may have trouble letting go.
Journal ArticleDOI
Aging Out Of Coverage: Young Adults With Special Health Needs
TL;DR: These Medicaid changes do move us toward a more basic solution: replacing employability with insurability and dependence on health interventions as the eligibility standards for public coverage for adults.
Journal ArticleDOI
Qualitative Analysis of Latino Parents' Religious Interpretations of Their Child's Disability
TL;DR: The authors demonstrate three ways of analyzing qualitative interview data: content, cultural models, and narrative analyses, and draw upon the same set of interview data with 25 interview subjects with 25 interviews.
Journal ArticleDOI
When patients and pediatricians say good-bye in a pediatric resident continuity clinic.
TL;DR: An exploration that evolved in response to the questions that third-year pediatric residents asked concerning how to say good-bye to their primary care patients in the context of their continuity clinic about the impact of termination is discussed.
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