Journal ArticleDOI
Health care transition: youth, family, and provider perspectives.
TLDR
Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process and supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures.Abstract:
Objective. This study examined the process of health care transition (HCT) posing the following questions: What are the transition experiences of youths and young adults with disabilities and special health care needs, family members, and health care providers? What are promising practices that facilitate successful HCT? What are obstacles that inhibit HCT? Methods. A qualitative approach was used to investigate these questions. Focus group interviews were conducted. Content and narrative analyses of interview transcripts were completed using ATLAS.ti. Results. Thirty-four focus groups and interviews were conducted with 143 young adults with disabilities and special health care needs, family members, and health care providers. Content analysis yielded 3 content domains: transition services, which presents a chronological understanding of the transition process; health care systems, which presents differences between pediatric and adult-oriented medicine and how these differences inhibit transition; and transition narratives, which discusses transition experience in the broader context of relationships between patients and health care providers. Conclusion. This study demonstrated the presence of important reciprocal relationships that are based on mutual trust between providers and families and are developed as part of the care of chronically ill children. Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process. Evidence further supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures. Young adults’ and family members’ lack of preparation for successful participation in the adult health care system contributes to problems with HCT.read more
Citations
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Journal ArticleDOI
Experiences of health care transition voiced by young adults with type 1 diabetes: a qualitative study
Katharine C. Garvey,M. Beste,Donna Luff,Astrid Atakov-Castillo,Howard Wolpert,Marilyn D. Ritholz +5 more
TL;DR: Modifiable deficiencies in the T1D transition process are identified and underscore the importance of a planned transition with enhanced preparation by pediatric clinics as well as developmentally tailored patient orientation in the adult clinic setting.
Journal ArticleDOI
“You think it’s hard now … It gets much harder for our children”: Youth with autism and their caregiver’s perspectives of health care transition services:
Nancy Cheak-Zamora,Michelle Teti +1 more
TL;DR: This study is among the first to qualitatively examine the health care transition experiences of youth with Autism Spectrum Disorder and their caregivers and uses thematic analysis strategies to identify key themes.
Journal ArticleDOI
Qualitative research in organ transplantation: Recent contributions to clinical care and policy
Allison Tong,Allison Tong,Jeremy R. Chapman,Ajay K. Israni,Elisa J. Gordon,Jonathan C. Craig,Jonathan C. Craig +6 more
TL;DR: This review highlights recent contributions of qualitative research to transplantation practice and policy, and identifies key principles to guide qualitative research appraisal.
Transition of patients with inflammatory bowel disease from pediatric to adult care Transition vers le gastroentérologue d'adultes des enfants suivis pour une maladie inflammatoire chronique intestinale
TL;DR: Effective planning, including a joint medical visit, enabled successful, well-coordinated transition to adult medical-care follow-up for inflammatory bowel disease patients and their parents.
Journal ArticleDOI
Health care transitions among youth with disabilities or special health care needs: an ecological approach.
TL;DR: The ecological model can help researchers and practitioners to design experimental interventions in multiple settings that ensure smooth transitions and support the well-being of youth with disabilities or SHCN.
References
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Journal ArticleDOI
Handbook of Qualitative Research
TL;DR: The discipline and practice of qualitative research have been extensively studied in the literature as discussed by the authors, including the work of Denzin and Denzin, and their history in sociology and anthropology, as well as the role of women in qualitative research.
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Gery W. Ryan,H. Russell Bernard +1 more
TL;DR: In fact, most of the archaeologically recoverable information about human thought and human behavior is text, the good stuff of social science as mentioned in this paper, which is what we use in this paper.
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TL;DR: The Qualitative Research in Health Care as discussed by the authors provides a clear and accessible introduction to conducting and interpreting qualitative research, incorporating new examples, references and chapters relevant for a comprehensive introduction to the subject.
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