Journal ArticleDOI
Health care transition: youth, family, and provider perspectives.
TLDR
Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process and supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures.Abstract:
Objective. This study examined the process of health care transition (HCT) posing the following questions: What are the transition experiences of youths and young adults with disabilities and special health care needs, family members, and health care providers? What are promising practices that facilitate successful HCT? What are obstacles that inhibit HCT? Methods. A qualitative approach was used to investigate these questions. Focus group interviews were conducted. Content and narrative analyses of interview transcripts were completed using ATLAS.ti. Results. Thirty-four focus groups and interviews were conducted with 143 young adults with disabilities and special health care needs, family members, and health care providers. Content analysis yielded 3 content domains: transition services, which presents a chronological understanding of the transition process; health care systems, which presents differences between pediatric and adult-oriented medicine and how these differences inhibit transition; and transition narratives, which discusses transition experience in the broader context of relationships between patients and health care providers. Conclusion. This study demonstrated the presence of important reciprocal relationships that are based on mutual trust between providers and families and are developed as part of the care of chronically ill children. Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process. Evidence further supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures. Young adults’ and family members’ lack of preparation for successful participation in the adult health care system contributes to problems with HCT.read more
Citations
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Journal ArticleDOI
Self-reported Transition Readiness of Adolescent Patients with Rheumatic Disease: Do the Parents Agree?
Christina Shewell Ma,Molly J. Dushnicky,Habeba Talaat,Steffy Thomas,Tania Cellucci,Stephanie Garner,Liane Heale,Mark Matsos,K. Beattie,Michelle Batthish +9 more
TL;DR: In this article , the authors compare transition readiness assessment scores from adolescents with rheumatic disease with their parents and analyze their level of agreement on the level of transition readiness, finding that adolescents and parents generally agree on the transition readiness; however, there is occasional disagreement in specific domains.
Journal ArticleDOI
A Report on the Positive Response to an Outdoor Nature Challenge of a Snow Camp for Young Liver Transplant Patients
E Soeda,Ken Hoshino,Yoshikane Izawa,C. Takaoka,C. Isobe,A. Takahashi,Nobuhiro Takahashi,Yohei Yamada,Naoki Shimojima,Akihiro Fujino,Masahiro Shinoda,Yuko Kitagawa,Minoru Tanabe,S. Nakamaru,N. Taki,A. Sekiguchi,Y. Nakazawa,T. Turukawa,Tatsuo Kuroda +18 more
TL;DR: An outdoor activity such as a snow camp can be safely conducted, and it is an acceptable option to incorporate within a pediatric liver transplant program, and there were no significant changes in IKR scores during this short observation.
Dissertation
Transition to adult health care for youth with disabilities: Implications for health policy
TL;DR: The combined findings of these studies suggest that health system strengthening, in the area of transitions to adult health care for youth with disabilities, should be supported through health policy implementation and/or change.
References
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Journal ArticleDOI
Handbook of Qualitative Research
TL;DR: The discipline and practice of qualitative research have been extensively studied in the literature as discussed by the authors, including the work of Denzin and Denzin, and their history in sociology and anthropology, as well as the role of women in qualitative research.
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Data Management and Analysis Methods
Gery W. Ryan,H. Russell Bernard +1 more
TL;DR: In fact, most of the archaeologically recoverable information about human thought and human behavior is text, the good stuff of social science as mentioned in this paper, which is what we use in this paper.
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Qualitative Research in Health Care
TL;DR: The Qualitative Research in Health Care as discussed by the authors provides a clear and accessible introduction to conducting and interpreting qualitative research, incorporating new examples, references and chapters relevant for a comprehensive introduction to the subject.
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